Improving Outcomes for Juvenile Idiopathic Arthritis

Improving Outcomes for Children Newly Diagnosed With Juvenile Idiopathic Arthritis Through a Structured Support Program (JASP-1) - A Longitudinal Register Study

Children and parents often experience uncertainty and stress when juvenile idiopathic arthritis (JIA) is first diagnosed, which creates a need for structured support. Juvenile Idiopathic Support Program (JASP-1) provide patient-and family centered support during the first year after diagnosis. However, little is known about how a support program like JASP-1 can influence outcomes. Therefore, this study aimed to longitudinally examine registry data from children who participated in JASP 1 and to compare the outcomes with registry data from a matched control group.

Methods: The study is a longitudinal register study with data from the Swedish Pediatric Rheumatology Quality Register (PedSRQ). Data included outcome measures from the child and/or the parents as well as clinical information's from the physicians.

Inclusion Criteria:

• For the JASP-1: Diagnosed with JIA and have completed the JASP-1.
• For the control group: Diagnosed with JIA at the same clinic as above

Exclusion Criteria:

• No JIA diagnosis
• Change of diagnose during the year
• Do not understand or speak Swedish