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The study aims to develop a home care guide, led by nurses, for stroke patients to maintain their activities of daily living, based on evidence-based current literature and guidelines, and to test the effect of this guide on caregiver burden. The results expected from this study are anticipated to contribute to the continuity of care in stroke patients, enhance self-care abilities through participation in daily activities, ensure adherence to treatment and care, control symptoms, reduce repeated hospitalizations, and improve the quality of life of caregivers by alleviating their caregiver burden.
The study was conducted in the home environment with caregivers of stroke patients registered at the Home Health Services unit of Sivas Numune Hospital.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| HOME CARE GUIDE | Active Comparator | The intervention group received training along with the developed home care guide, and pre-test, mid-test, and post-test were administered. |
|
| Control Group | No Intervention | In the control group, pre-test and post-test were administered without any intervention. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Training and Materials | Other | The home care guide developed for activities of daily living was provided to the intervention group, and training related to it was delivered. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Personal Information Form for Caregivers | It includes items such as the caregiver's demographic data (age, gender, marital status, number of children, education level, occupation, degree of relationship to the patient, income status), patient care experience, the presence of chronic diseases accompanying the stroke diagnosis, and the duration of caregiving. | This intervention was applied to both the intervention and control groups during pre-testing conducted in weeks 0-4 of the study. |
| Caregiver Burden Scale | The scale consists of 22 items that determine the impact of caregiving on the lives of individuals who care for a person in need. The scale is a Likert-type instrument ranging from 0 to 4, with the options 'never,' 'rarely,' 'sometimes,' 'quite frequently,' and 'almost always.' The minimum score that can be obtained from the scale is 0 and the maximum score is 88. The items in the scale generally focus on social and emotional aspects, and a higher total score indicates a higher level of distress experienced by the caregiver. The scores are evaluated as follows: 0-20 indicates little or no burden, 21-40 indicates mild to moderate burden, 41-60 indicates moderate to severe burden, and 61-88 indicates severe burden. The Cronbach's alpha reliability coefficient of the scale is 0.95. | The intervention group was administered a pre-test (weeks 0-4), an intermediate test (weeks 5-8), and a post-test (weeks 9-12), while the control group received a pre-test (weeks 0-4) and a post-test (weeks 9-12). |
| Bakas Caregiving Outcomes Scale | The scale consists of 16 items and evaluates the positive and negative life changes experienced as a result of caregiving, ranging from the best direction (+3) to the worst direction (-3) (min. 15, max. 105). The scale has no subdimensions. As the total score obtained from the scale increases, it indicates a 'positive change,' while a decrease in the score indicates a 'negative change.' The Turkish validity and reliability study of the scale was conducted by Can and Cavlak in 2010. In that study, the internal consistency coefficient of the scale was found to be 0.90, and the test-retest reliability was 0.961. | The intervention group was administered a pre-test (weeks 0-4), an intermediate test (weeks 5-8), and a post-test (weeks 9-12), while the control group received a pre-test (weeks 0-4) and a post-test (weeks 9-12). |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| MUKADDER MOLLAOĞLU, Prof.Dr. | Cumhuriyet University | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Sivas Numune Hospital | Sivas | 58000 | Turkey (Türkiye) |
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| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| ID | Term |
|---|---|
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
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