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The goal of this clinical trial is to evaluate whether an arts-based storytelling and narrative medicine workshop series can improve social connection, illness identity, and psychological well-being in adolescents and young adults with chronic illness, specifically diabetes.
The main questions it aims to answer are:
Participants will be 16-25 years old and recruited through the UCSF Pediatric Diabetes Clinic. Individuals must be able to participate in group workshops and complete surveys and interviews related to the study.
Participants will:
This study aims to explore the role of narrative medicine and arts-based interventions in supporting adolescents and young adults with chronic illness and assess their potential benefits as a supplement to standard medical care.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Arts-Based Storytelling Workshop Series | Experimental | Participants in this study will take part in an eight-week arts-based storytelling workshop series designed to promote social connection, self-expression, illness identity development, and psychological well-being in adolescents and young adults with diabetes. Workshops will be conducted weekly and will include: -Close engagement with written, visual, or artistic materials centered on themes such as identity, resilience, relationships, uncertainty, growth, and coping with chronic disease - Facilitated group discussions and sharing intended to foster peer support, connection, emotional processing, and self-expression - Creative arts exercises, including writing, storytelling, drawing, or other forms of creative expression in response to structured prompts |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Arts-Based Storytelling Workshop Series | Behavioral | The Arts-Based Storytelling Workshop Series is a structured eight-week behavioral intervention designed to enhance self-expression, social connection, emotional reflection, and psychological well-being in adolescents and young adults with diabetes. This intervention differs from traditional educational or counseling approaches by integrating creative expression, guided reflection, and group dialogue as therapeutic tools. Each weekly session includes: -Engagement with written, visual, or artistic prompts centered on themes such as identity, resilience, relationships, coping, uncertainty, and growth in the context of chronic illness -Facilitated group discussion and sharing designed to promote peer support, emotional processing, and a sense of community among participants - Creative exercises in response to structured prompts, including writing, storytelling, drawing, or other expressive activities that support personal reflection |
| Measure | Description | Time Frame |
|---|---|---|
| Participant retention and attendance | Feasibility will be assessed by tracking the number of participants who attend each of the 8 weekly sessions, including overall completion of the program. | Throughout intervention (Weeks 1-8), assessed immediately post-intervention (Week 8) |
| Participant satisfaction | Acceptability will be assessed using post-intervention satisfaction questionnaires with 5-point Likert-scale items and semi-structured individual interviews. Measures will evaluate perceived relevance of workshop content, usefulness of creative prompts, quality of group discussion, and facilitation experience. Scale title: Intervention Satisfaction Questionnaire (ISQ) Minimum value: 1 (Strongly Disagree) Maximum value: 5 (Strongly Agree) Interpretation: Higher scores indicate greater satisfaction with the intervention. | Immediately post-intervention (Week 8) |
| Measure | Description | Time Frame |
|---|---|---|
| Illness identity | Assessed using the Illness Identity Questionnaire, which evaluates how individuals integrate a chronic illness into their sense of self. Scores reflect different illness identity orientations, with higher scores indicating stronger endorsement of the corresponding identity state. Scale title: Illness Identity Questionnaire (IIQ) Minimum value: 1 (Strongly Disagree) Maximum value: 5 (Strongly Agree) Interpretation: Subscale scores reflect distinct illness identity states; higher scores indicate greater endorsement of that identity orientation |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Anoushka A Sinha, MD, MS | Contact | 628-286-6116 | anoushka.sinha@ucsf.edu | |
| Lina Lew, BS | Contact | 858-231-7426 | Lina.Lew@ucsf.edu |
| Name | Affiliation | Role |
|---|---|---|
| Anoushka Sinha, MD, MS | University of California, San Francisco | Principal Investigator |
| Lina Lew, BS | University of California, San Francisco | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of California, San Francisco | San Francisco | California | 94107 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 39501781 | Background | Yuan Y, Zhou S, Xu J, Li X. Promoting Resilience and Well-Being of Young Adults with Diabetes Through Digital Storytelling in Arts-Based Research. Health Commun. 2025 Nov;40(13):2828-2838. doi: 10.1080/10410236.2024.2424408. Epub 2024 Nov 6. | |
| 33101097 | Background | Wigham S, Watts P, Zubala A, Jandial S, Bourne J, Hackett S. Using Arts-Based Therapies to Improve Mental Health for Children and Young People With Physical Health Long-Term Conditions: A Systematic Review of Effectiveness. Front Psychol. 2020 Sep 25;11:1771. doi: 10.3389/fpsyg.2020.01771. eCollection 2020. |
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| ID | Term |
|---|---|
| D003920 | Diabetes Mellitus |
| ID | Term |
|---|---|
| D044882 | Glucose Metabolism Disorders |
| D008659 | Metabolic Diseases |
| D009750 | Nutritional and Metabolic Diseases |
| D004700 | Endocrine System Diseases |
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|
| Pre-intervention (Week 0) and post-intervention (Week 8) |
| Social connectedness | Measured using the Social Connectedness Scale (SCS), which assesses perceived closeness to others and sense of belonging. Scale title: Social Connectedness Scale (SCS) Minimum value: 1 (Strongly Disagree) Maximum value: 6 (Strongly Agree) Interpretation: Higher scores indicate greater feelings of social connectedness and belonging. | Pre-intervention (Week 0) and post-intervention (Week 8) |
| Self-reported well-being | Measured using the WHO-5 is a self-report instrument measuring mental well-being. Scale title: Psychosocial functioning scale (PFQ) Minimum value: 0 (At no time) Maximum value: 5 (All of the time) Interpretation: Higher scores indicate greater well-being. | Pre-intervention (Week 0) and post-intervention (Week 8) |
| Self-esteem | Measured using the Rosenberg Self-Esteem Scale (RSE), which assesses global self-worth, self-worth and self-acceptance. Scale Minimum value: 1 (Strongly agree) Maximum value: 4 (Strongly disagree) Interpretation: Higher total scores indicating more positive self-esteem. | Pre-intervention (Week 0) and post-intervention (Week 8) |
| Qualitative themes from interviews and group reflections | Semi-structured interviews will explore participant experiences of identity development, meaning-making, peer support, and emotional processing. Transcripts will be analyzed using thematic analysis to identify recurring patterns and narrative themes related to chronic illness experience and psychosocial adaptation. | Pre-intervention (Week 0) and post-intervention (Week 8) |
| Calis Lim, BS |
| Rosalind Franklin University |
| Study Chair |
| 41739534 | Background | Rappolt EL, Cho E, Tanenbaum ML, Myers A, Mulvaney SA. Story-based interventions for chronic health conditions in youth: a systematic review and narrative synthesis. J Pediatr Psychol. 2026 Feb 25:jsag014. doi: 10.1093/jpepsy/jsag014. Online ahead of print. |
| 40755940 | Background | Maragh-Bass AC, Dinh N, Cooney G, Aikhuele E, Chandler R, Hughes R, Jones Z, Thomas S, Soberano ZR, Stocks JB, Budhwani H, Hightow-Weidman LB, Lorenzetti L. The role of digital storytelling methods in promoting health-related outcomes among young adults of color: a systematic review. Mhealth. 2025 Jul 14;11:42. doi: 10.21037/mhealth-24-65. eCollection 2025. |
| 36292429 | Background | Lanis A, Tu E, Peskin M, Melendez M, Tarshish G, Akinsete A, Hoffman A, Kenney-Riley K, Rubinstein T, Wahezi D. Storytelling of Young Adults with Chronic Rheumatologic Illnesses: A Pilot Study. Healthcare (Basel). 2022 Oct 9;10(10):1979. doi: 10.3390/healthcare10101979. |
| 31266352 | Background | Gucciardi E, Reynolds E, Karam G, Beanlands H, Sidani S, Espin S. Group-based storytelling in disease self-management among people with diabetes. Chronic Illn. 2021 Sep;17(3):306-320. doi: 10.1177/1742395319859395. Epub 2019 Jul 2. |
| 33206407 | Background | Continisio GI, Nunziata F, Coppola C, Bruzzese D, Spagnuolo MI, Guarino A. Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer. Scand J Psychol. 2021 Feb;62(1):58-63. doi: 10.1111/sjop.12690. Epub 2020 Nov 18. |
| 27401836 | Background | Gucciardi E, Jean-Pierre N, Karam G, Sidani S. Designing and delivering facilitated storytelling interventions for chronic disease self-management: a scoping review. BMC Health Serv Res. 2016 Jul 11;16:249. doi: 10.1186/s12913-016-1474-7. |