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| ID | Type | Description | Link |
|---|---|---|---|
| 5K08CA285829 | U.S. NIH Grant/Contract | View source |
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| Name | Class |
|---|---|
| National Cancer Institute (NCI) | NIH |
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This study will test a novel intervention to facilitate family-centered communication among Hispanic/Latino (H/L) young adult childhood cancer survivors (YA-CCS), their support persons, and their clinicians through collaboration between the clinic and a community-based organization.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Family-Centered Communication | Experimental | Young Adult Cancer Survivors (YA-CCS)-support person dyads receive a family-centered communication intervention delivered by a community health worker and coordinated around a standard-of-care survivorship clinic visit. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Family-Centered Communication Intervention | Behavioral | A novel family-centered communication intervention designed to facilitate communication among Young Adult Cancer Survivors (YA-CCS), their chosen support person, and clinicians through collaboration between the clinic and a community-based organization. The intervention includes pre-visit and post-visit sessions delivered by a community health worker and timed around a standard-of-care survivorship clinic visit. |
| Measure | Description | Time Frame |
|---|---|---|
| Proportion of invited young adult cancer survivor-support person dyads enrolled | Feasibility assessed by the proportion of invited dyads who enroll in the study. | From recruitment initiation through completion of study enrollment, up to 24 months |
| Proportion of enrolled young adult cancer survivors completing all intervention components | Feasibility assessed by the proportion of enrolled young adult cancer survivor participants who complete all intervention components. | From intervention initiation through intervention completion, up to 3 weeks |
| Mean Theoretical Framework of Acceptability questionnaire score | Acceptability assessed using participant-reported Theoretical Framework of Acceptability (TFA) questionnaire scores. Scores range from 1-5, with higher scores indicating greater acceptability. | Post-intervention, within 2 months after intervention completion |
| Mean Satisfaction With Visit Preparation questionnaire score | Acceptability assessed using participant-reported Satisfaction With Visit Preparation questionnaire scores. Scores range from -10 to 10, with higher scores indicating greater satisfaction. | Post-intervention, within 2 months after intervention completion |
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Inclusion Criteria:
Exclusion Criteria:
1. Lack of proficiency in written and spoken English or Spanish
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Stephanie Smith, MD, MPH | Contact | 209-609-0208 | smithsm@stanford.edu |
| Name | Affiliation | Role |
|---|---|---|
| Stephanie Smith, MD, MPH | Stanford University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Stanford University | Palo Alto | California | 94304 | United States |
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| ID | Term |
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| D009369 | Neoplasms |
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