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The main purpose of this study is to determine if a tailored peer support intervention (STEPP-Care) is feasible among caregivers of patients undergoing hematopoietic stem cell transplantation (HSCT).
Caregivers play a vital role in recovery following hematopoietic stem cell transplantation (HSCT). However, caregiving can contribute to psychological distress and reduced quality of life (QOL). Additionally, HSCT caregivers report low self-efficacy and social support, protective factors which would otherwise help bolster their confidence in coping with the uncertainties and challenges of HSCT. Given the challenges and unmet psychosocial needs of HSCT caregivers, peer support interventions are poised to promote caregiver coping to address caregiver distress and quality of life concerns. With limited tailored peer support interventions, for HSCT caregivers, this study aims to assess the feasibility and acceptability of a peer support intervention (STEPP-Care) and examine its preliminary effects for improving QOL, caregiver burden, and psychological well-being compared to usual care in 90 caregivers of HSCT recipients.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| STEPP-Care | Experimental | STEPP-Care is a phone delivered six session structured peer support intervention. |
|
| Usual Care | No Intervention | Routine supportive care provided by social workers embedded in the HCT clinical teams will be used as the usual care control condition. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| STEPP-Care | Behavioral | STEPP-Care is a phone-delivered six-session structured peer support intervention for caregivers of patients undergoing hematopoietic stem cell transplantation. |
| Measure | Description | Time Frame |
|---|---|---|
| Intervention Feasibility | Feasibility can be defined as >/= 60% of STEPP-Care recipients completing 4/6 sessions | up to 10 weeks |
| Intervention Acceptability | Acceptability can be defined as average STEPP-Care intervention participant ratings >20 on the Client Satisfaction Questionnaire | up to 10 weeks |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Hermioni L. Amonoo, MD, MPP, MPH | Contact | 617-525-7472 | hermioni_amonoo@dfci.harvard.edu | |
| Josephine Monahan, BA | Contact | jamonahan@bwh.harvard.edu |
| Name | Affiliation | Role |
|---|---|---|
| Hermioni L. Amonoo, MD, MPP, MPH | Brigham and Women's Hospital | Principal Investigator |
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