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| Name | Class |
|---|---|
| Institut Curie | OTHER |
| Gustave Roussy, Cancer Campus, Grand Paris | OTHER |
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The goal of this observational study is to describe palliative pathways in adult patients who died from their sarcoma.
The main question it aims to answer is:
How patients who died from sarcoma are followed by palliative team.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| adult patients who died from sarcoma with >1 agressivness near the end of life criteria | |||
| adult patients who died from sarcoma with 0-1 agressivness near the end of life criteria |
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| Measure | Description | Time Frame |
|---|---|---|
| Palliative pathways of patients who died from sarcoma | Palliative pathways will be described using the proportion of patients with each of the following component :
| From date of inclusion until the date of death from any cause, assessed up to 42 months |
| Measure | Description | Time Frame |
|---|---|---|
| Treatment with chemotherapy in the last 14 days of life | Percentage and number of patients having a treatment with chemotherapy in the last 14 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months |
| More than 1 visit in an emergency unit in the last 30 days of life |
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Inclusion Criteria:
Exclusion Criteria:
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All patients with sarcoma follow up in Centre Léon Bérard, or Institut Gustave Roussy, or Institut Curie who died in 2024
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Centre Leon Berard | Lyon | France |
Individual Participant Data must not be shared according to the local regulation
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| ID | Term |
|---|---|
| D012509 | Sarcoma |
| D009369 | Neoplasms |
| D003643 | Death |
| ID | Term |
|---|---|
| D018204 | Neoplasms, Connective and Soft Tissue |
| D009370 | Neoplasms by Histologic Type |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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Percentage and number of patients having more than 1 visit in an emergency unit in the last 30 days of life |
| From date of inclusion until the date of death from any cause, assessed up to 42 months |
| Hospitalization in a resuscitation unit in the last 30 days of life | Percentage and number of patients having a hospitalization in a resuscitation unit in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months |
| More than 1 hospitalization in the last 30 days of life | Percentage and number of patients having more than 1 hospitalization in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months |
| Less than 3 days in palliative care unit | Percentage and number of patients having a hospitalization in a palliative care unit less than three days before death | From date of inclusion until the date of death from any cause, assessed up to 42 months |
| New chemotherapy regimen starting in the last 30 days of life | Percentage and number of patients having a new chemotherapy regimen starting in the last 30 days of life | From date of inclusion until the date of death from any cause, assessed up to 42 months |
| Place of death | Hospital and type of unit or home will be described | At the date of death from any cause, assessed up to 42 months |