Personalized Stories for Pediatric Kidney Recipients

Generating Personalized Stories With Artificial Intelligence for Pediatric Kidney Recipients

Pediatric kidney transplant recipients often face major psychosocial challenges that are difficult to address with existing tools. This study evaluates whether clinically supervised AI can generate personalized, age-adapted therapeutic stories for these children and their families.

Pediatric kidney transplant recipients face substantial psychosocial challenges, including anxiety, fear, difficulty understanding complex medical experiences, and challenges returning to school and social life. Therapeutic storytelling may help children process these experiences, but truly personalized stories are difficult to produce manually at scale. Large language models offer the opportunity to generate age-adapted, personalized, and clinically supervised stories. This study aims to develop and evaluate an AI-assisted storytelling workflow for pediatric kidney recipients and their families.

Inclusion Criteria:

• Age 5-12 years inclusive at enrolment.
• Recipient of a kidney transplant.
• Clinically stable at enrolment (no active rejection, acute infection, or current hospitalization for a graft-related complication).
• Fluency in French or English.
• Written informed consent from parent(s)/legal guardian(s); child assent when age-appropriate.

Exclusion Criteria:

• Severe cognitive impairment precluding engagement with narrative content.
• Mental state not allowing participation.
• Family unwilling or unable to commit to the study timeline and interview requirements.