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| Name | Class |
|---|---|
| Aarhus University Hospital | OTHER |
| Odense University Hospital | OTHER |
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The aim of this study is to describe national trends over the past 10 years in patients receiving invasive home mechanical ventilation (HMV) in Denmark. This includes indications for invasive HMV, diagnostic groups, and one-year mortality.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Invasive mechanical ventilation |
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| Measure | Description | Time Frame |
|---|---|---|
| Incidence of patients with invasive home mechanical ventilation | Incidence of patients with invasive home mechanical ventilation per year per 100,000 population | Each year during the periode from 01.01.2016 to 12.31.2025 |
| Measure | Description | Time Frame |
|---|---|---|
| Prevalence of patients on home mechanical ventilation pr. year | Each year during the periode from 01.01.2016 to 12.31.2025 | |
| Number of new patients on invasive home mechanical ventilation per year | The absolute number of patients starting on invasive home mechanical ventilation each year. |
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Inclusion Criteria:
Exclusion Criteria:
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Patients in Denmark with a respiratory certified personale care assistent who are fully or partially dependent on invasive ventilation during the period 2016-2025.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Janne B Stokholm, M.D. | Contact | +45 38632376 | janne.boegh.stokholm.01@regionh.dk | |
| Anne-Katrine Staehr-Rye | Contact | +45 24455276 | anne.kathrine.staehr.rye@regionh.dk |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Respiratory Center East | Recruiting | Copenhagen | 2600 | Denmark |
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| ID | Term |
|---|---|
| D009468 | Neuromuscular Diseases |
| D000690 | Amyotrophic Lateral Sclerosis |
| D013119 | Spinal Cord Injuries |
| D020388 | Muscular Dystrophy, Duchenne |
| D009134 | Muscular Atrophy, Spinal |
| D012791 | Shy-Drager Syndrome |
| ID | Term |
|---|---|
| D009422 | Nervous System Diseases |
| D013118 | Spinal Cord Diseases |
| D002493 | Central Nervous System Diseases |
| D016472 | Motor Neuron Disease |
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| Each year during the periode from 01.01.2016 to 12.31.2025 |
| One-year mortality | 1-year mortality after initiation of invasive home mechanical ventilation | Periode from 01.01.2016 to 12.31.2025 |
| D019636 | Neurodegenerative Diseases |
| D057177 | TDP-43 Proteinopathies |
| D057165 | Proteostasis Deficiencies |
| D008659 | Metabolic Diseases |
| D009750 | Nutritional and Metabolic Diseases |
| D020196 | Trauma, Nervous System |
| D014947 | Wounds and Injuries |
| D009136 | Muscular Dystrophies |
| D020966 | Muscular Disorders, Atrophic |
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
| D040181 | Genetic Diseases, X-Linked |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D019578 | Multiple System Atrophy |
| D054969 | Primary Dysautonomias |
| D001342 | Autonomic Nervous System Diseases |
| D001480 | Basal Ganglia Diseases |
| D001927 | Brain Diseases |
| D009069 | Movement Disorders |
| D007022 | Hypotension |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |