EPOCH-Economics and Patient Outcomes in China in Haemophilia

EPOCH-Economics and Patient Outcomes in China in Haemophilia

The overarching goal of the EPOCH project is to:

• Support a broad and robust needs assessment in the haemophilia space in China
• Measure the variability in the needs and care provision
• Generate outcome data (health economic outcomes and supporting clinical and PRO data) to enable measuring the impact of different treatment modalities and different levels of treatment access PRIMARY OBJECTIVES
• Determine the burden of haemophilia in China, and the determinants of its variability
• Determine the costs of haemophilia care in China, and the determinants of its variability SECONDARY OBJECTIVES
• Measure treatment patterns and their variability
• Measure levels of access to care
• Estimate the impact of haemophilia and its treatment of patients reported outcomes
• Understand consistency of care by centres/geography/demographics

Inclusion Criteria:

• Male patients, aged ≥12 years at the index date
• Patients must be diagnosed with non-acquired severe haemophilia A or B prior to the previous 12 months
• Patients who are able to understand and assent / consent to the study

Exclusion Criteria:

• Patients who cannot, for any reasons (language barriers, mental incapacity, etc.) understand and answer the questions of the study questionnaires
• Patients that cannot access internet connection or download the application