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| ID | Type | Description | Link |
|---|---|---|---|
| 25HSR-ADRD-1487208 | Other Grant/Funding Number | Alzheimer's Association |
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| Name | Class |
|---|---|
| Alzheimer's Association | OTHER |
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This project aims to improve knowledge regarding Alzheimer's dementia and related dementias (ADRD) among older adults and their caregivers in Vietnam and promote the early diagnosis of ADRD using a digital storytelling intervention.
This study will develop and test a Digital Storytelling intervention to improve older adults' and caregivers' knowledge of ADRD and to facilitate early diagnosis in rural areas of Vietnam. The Digital Storytelling Intervention includes interactive multimedia modules for motivating behavior change and improving knowledge and attitudes toward ADRD among older adults and their caregivers through the power and voices of patients with mild to moderate ADRD, older persons with cognitive concerns, and their caregivers. Mobile Health technology (Computerized Intervention Authoring System - CIAS) will be used to deliver the intervention.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Control | Active Comparator | Participants in this arm will receive basic information. |
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| Intervention | Experimental | Participants in this arm will receive the storytelling intervention. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Storytelling intervention | Behavioral | Participants will receive a digital storytelling intervention featuring narratives from older adults with mild to moderate Alzheimer's disease and related dementias (ADRD) and their caregivers who have successfully managed the condition. The stories highlight the benefits of early ADRD diagnosis and strategies for managing diagnostic and care-related challenges. The intervention will be delivered at baseline and biweekly thereafter for three months via CIAS, with didactic "Learn More" modules provided following the stories. |
| Measure | Description | Time Frame |
|---|---|---|
| Intervention Feasibility: Participant Recruitment and Retention | Feasibility will be assessed using recruitment and retention records, including the number of participants approached, reasons for ineligibility or refusal, and study completion rates. | Baseline, Month 3, Month 6 |
| Intervention Engagement: Interaction Records from CIAS | Engagement will be assessed using the number of videos watched. | Month 3, Month 6 |
| Intervention Engagement: Exit Interview | Information on participants' experiences with the intervention will be collected through exit interviews. | Month 6 |
| Intervention Acceptability: System Usability Scale (SUS) | SUS is a 10-item, 5-point Likert scale for subjective assessment of usability. The SUS scores range from 0 to 100. A score of > 50 indicates that the technology-based interventions are acceptable. | Month 3, Month 6 |
| ADRD Knowledge: Dementia Knowledge Assessment Scale (DKAS) | DKAS is a 25-item scale that evaluates dementia knowledge. Total scores range from 0 to 50, with higher scores indicating greater knowledge. | Baseline, Month 3, Month 6 |
| Attitudes: Dementia Attitude Scale (DAS) | DAS is a 20-item, 7-point Likert scale assessing attitudes toward dementia and people living with dementia. Items are summed, with selected items reverse-coded as appropriate, to calculate a total score (range: 20-140). Higher scores indicate more positive attitudes. | Baseline, Month 3, Month 6 |
| Measure | Description | Time Frame |
|---|---|---|
| ADRD Screening/Diagnosis | Rates of ADRD screening and diagnosis will be obtained via interviews and through review of participants' medical records by trained study staff. The diagnosis will be reviewed and confirmed by the study co-investigators (physicians). | Month 3, Month 6 |
| Quality of Life: SF-12 |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Hoa Nguyen, PhD | Contact | 508-856-8999 | hoa.nguyen@umassmed.edu | |
| Deogwoon Kim, PhD | Contact | deogwoon.kim13@umassmed.edu |
| Name | Affiliation | Role |
|---|---|---|
| Hoa Nguyen, PhD | University of Massachusetts, Worcester | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Vietnam National Geriatric Hospital | Hanoi | Vietnam | Vietnam |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| Background | Khanh, D. V. D., Van Thang, V., Dung, H., & BinhThang, T. (2015). Prevalence of dementia among the elderly and health care needs for people living with dementiain an urban community of central Vietnam. Vietnam Journal of Public Health-www. vjph. org, 3(1). | ||
| 39045484 | Background | Nguyen HL, Ha DA, Tran OT, Phan VH, Nguyen CT, Nguyen GH, Nguyen TT, Le TT, Goldberg RJ, Wang B, Tang ET, Chiriboga G, Budhwani H, Allison JJ. Conquering hypertension in Vietnam: 12- month follow up results from a cluster-randomised controlled trial. Lancet Reg Health West Pac. 2024 Jul 1;48:101123. doi: 10.1016/j.lanwpc.2024.101123. eCollection 2024 Jul. | |
| 30596749 |
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De-identified participant data that will be collected for this study can be obtained by contacting the study PI.
The final dataset will be available from January 2028 to January 2037.
The data and associated documentation will be available to qualified academic investigators for non-commercial research under a data-sharing agreement that provides for: (1) a commitment to using the data only for research purposes and not to identify any individual participant; 2) a commitment to securing the data using appropriate computer technology; and 3) a commitment to destroying or returning the data after analyses are completed.
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| ID | Term |
|---|---|
| D000544 | Alzheimer Disease |
| ID | Term |
|---|---|
| D003704 | Dementia |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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Cluster randomized controlled trial
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| Basic information | Behavioral | Participants will receive basic information about Alzheimer's disease and related dementias (ADRD), issued by the Vietnam Ministry of Health (usual care), at baseline and at Month 3. |
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The SF-12 is a 12-item scale that assesses health-related quality of life across physical and mental well-being domains. Scores can range from 0 to 100, with higher scores indicating better quality of life. |
| Baseline, Month 3, Month 6 |
| Self-Care: The Self-Care of Chronic Illness Inventory (SC-CII) | SC-CII is a 29-item scale assessing self-care behaviors across three domains: self-care maintenance, self-care monitoring, and self-care management. Scores range from 0 to 100, with higher scores indicating better self-care. | Baseline, Month 3, Month 6 |
| Background |
| Nguyen HL, Ha DA, Goldberg RJ, Kiefe CI, Chiriboga G, Ly HN, Nguyen CK, Phan NT, Vu NC, Nguyen QP, Allison JJ. Culturally adaptive storytelling intervention versus didactic intervention to improve hypertension control in Vietnam- 12 month follow up results: A cluster randomized controlled feasibility trial. PLoS One. 2018 Dec 31;13(12):e0209912. doi: 10.1371/journal.pone.0209912. eCollection 2018. |
| 37710164 | Background | Huynh-Truong HL, Shyu YL, Tran TKL, Huang HL, Do VA. Dementia care practices among community healthcare workers in Vietnam: a qualitative descriptive study. BMC Geriatr. 2023 Sep 14;23(1):562. doi: 10.1186/s12877-023-04199-0. |
| D024801 |
| Tauopathies |
| D019636 | Neurodegenerative Diseases |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |