This study generates information on the feasibility and acceptability of a 3-month ecological momentary assessment (EMA) protocol to assess chronic pain and opioid use in adolescent and young adult (AYA) sarcoma survivors.

PRIMARY OBJECTIVES:

I. Evaluate the feasibility and acceptability of a 3-month EMA protocol in AYA sarcoma survivors.

II. Quantify variability in pain and opioid use over a 3-month period for AYA sarcoma survivors.

III. Identify associations between biopsychosocial mechanisms (e.g., pain beliefs, worry) and pain and opioid use outcomes.

OUTLINE: This is an observational study.

Patients complete baseline questionnaires, daily EMA surveys and an interview on study.

Inclusion Criteria:

• All genders between the ages of 12-24 (inclusive) at sarcoma diagnosis.
• Any age < 70 at the time of study enrollment.
• No evidence of disease and/or enrolled in survivorship care.
• Clinically meaningful pain related to disease or its treatments at baseline (defined as 3 or greater on a 0-10 Numerical Rating Scale).
• Willing to attend the baseline appointment in person.
• Access to internet-capable smartphone.
• Access to internet on an occasional basis.
• Willing and able to complete Ecological Momentary Assessments (EMAs) on internet-capable smartphone for a 3-month period after enrollment.
• Ability to understand and provide informed consent/assent.

Exclusion Criteria:

• * Currently receiving active cancer-directed therapy.

  • Unable to read or fluently speak English.
  • Determined by clinical staff to have preexisting or cancer-associated cognitive impairment that could interfere with study participation.
  • Acutely suicidal (e.g. intent or plan) or, with unstable medical or psychiatric condition verified by licensed study staff.
  • Characteristics related to inability to complete the study protocol.

Patients younger than 70 years old who were diagnosed with sarcoma between the ages of 12-24 and have no evidence of disease and/or are enrolled in survivorship care.