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In this planned project, we aim to evaluate the FamCASP model and the digital screening tool SCa-N as an intervention within routine cancer care. An expected outcome of FamCASP is an increase in family health as expressed in lower levels of psychological distress, improved coping strategies and family climate and a decrease in unmet needs as measured by family members' self-reports as well as their descriptions during interviews. Hence, the specific aims are to:
I. Describe differences in psychological distress, coping strategies, family climate and unmet needs between baseline and follow-up in family members receiving support according to the FamCASP model in outpatient cancer clinics and to explore whether or not there are differences between family members receiving support and those who do not receive support.
II. Describe family members' experiences of receiving support according to the FamCASP model.
III. Describe family members' experiences of interacting with the digital tool.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention group | Experimental |
| |
| Control group | No Intervention |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| FamCASP | Other | Support model |
|
| Measure | Description | Time Frame |
|---|---|---|
| Support needs | The Supportive Care Needs Survey - Partners and Caregivers | 12 months post diagnosis |
| Measure | Description | Time Frame |
|---|---|---|
| Health | EQ5D | 12 months post diagnosis |
| Measure | Description | Time Frame |
|---|---|---|
| Anxiety and depression | Hospitla Anxiety and Despression Scale | 12 months post diagnosis |
| Coping | Brief Coping Scale | 12 months post diagnosis |
Inclusion Criteria:
Participants are adult (≥18years) family members to patients diagnosed with CRC. Inclusion criteria are the ability to read and understand Swedish and having access to a computer, tablet or mobile phone to access the digital screening tool as well as the study information.
Exclusion Criteria:
-
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
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Cluster
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