This study may help doctors determine where patients and caregivers may need more support and identify ways to maintain patient and caregiver dignity while undergoing treatment.

PRIMARY OBJECTIVE:

I. Change in patient dignity impact scale scores prior to and after completion of patient and caregiver recordings.

OUTLINE: This is an observational study.

Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.

Inclusion Criteria:

• Age ≥ 18 years
• Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one
• Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver
• Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver

Exclusion Criteria:

• Uncontrolled and/or intercurrent illness which limits participation in study recording
• Vulnerable populations: persons lacking capacity for understanding participation in this study

Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one.