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The study focuses on rehabilitation nursing care for adults diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a home setting. The objective is to evaluate the effects of an individualised rehabilitation programme, which aims to empower participants to manage their energy effectively, observing the impacts on functionality and fatigue.
During the study, we collected sociodemographic data, information about the clinical evolution, patient perception of the disease. Instruments were applied to assess quality of life, functionality, and fatigue levels. This will allow to understand how to improve rehabilitation nursing care.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention arm | Experimental |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Intervention Group | Behavioral | An educational program focused on energy management and developed by the United Kingdom's NICE. The overall aim of the intervention was the empowerment of patients with self-management strategies that could help them to maximize their autonomy, independence and daily activities without exceeding their perceived energy reservoir. |
| Measure | Description | Time Frame |
|---|---|---|
| Functional Assessment | Short Form Health Survey: SF 36 v2 (physical dimension) | Assessment at two time points: M0 - before the start of the intervention; M1 - 12 weeks after the end of the intervention. |
| Quality of Life Measure | Quality-of-life measure: EuroQoL 5D-5L | Assessment at two time points: M0 - before the start of the intervention; M1 - 12 weeks after the end of the intervention. |
| Fatigue Assessment | Application of the Chalder Fatigue Scale | Assessment at two time points: M0 - before the start of the intervention; M1 - 12 weeks after the end of the intervention. |
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Inclusion Criteria:
Exclusion Criteria:
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa, Portugal. | Oliveira de Azeméis | Aveiro District | 3720-126 | Portugal |
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|
| ID | Term |
|---|---|
| D015673 | Fatigue Syndrome, Chronic |
| D005221 | Fatigue |
| ID | Term |
|---|---|
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
| D004679 | Encephalomyelitis |
| D000090862 | Neuroinflammatory Diseases |
| D009422 | Nervous System Diseases |
| D009468 | Neuromuscular Diseases |
| D002908 | Chronic Disease |
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D012816 | Signs and Symptoms |
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