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This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.
This study aims to investigate the experiences and perceptions of patients with Takayasu arteritis regarding their disease, as well as the perspectives of physicians regarding the management and treatment of these patients.
Patients with TAK will be invited to complete an anonymous online (Online Surveys) questionnaire, which will take approximately 25 minutes and will consist of multiple-choice and short-answer questions. The questionnaire will ask about their experience with the condition, symptoms, treatments they have received, and any concerns or priorities they have regarding their care.
Physicians who treat TAK will also be invited to complete a separate online questionnaire, taking around 15 minutes and also consisting of multiple-choice and short-answer questions. This will explore how they diagnose and manage TAK, their choice of treatments, and any challenges they face in treating the condition
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with Takayasu Arteritis |
| ||
| Physicians Involved in the Management of Patients with Takayasu Arteritis |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Questionnaire | Other | An online annoymous questionnaire consisting of short-answer and multiple-choice questions |
|
| Measure | Description | Time Frame |
|---|---|---|
| Patient Perspective | To understand the lived experiences of individuals with TAK, including their symptoms, health status post-diagnosis, treatment priorities, and concerns. The questionnaire covers the following topics:
| Day 1 |
| Physician Perspective | To evaluate current clinical management strategies for TAK, identify treatment priorities, and highlight areas of unmet need in clinical practice. The physician questionnaire covers the following topics:
| Day 1 |
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Inclusion Criteria:
For the patient questionnaire:
For the physician questionnaire
• A physician involved in the management/decision-making for patients diagnosed with TAK
Exclusion Criteria:
For the patient questionnaire:
For the physician questionnaire
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Participants are UK-based
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Alexandra Armstrong | Contact | +447445695898 | A.Armstrong-9@sms.ed.ac.uk |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Edinburgh | Recruiting | Edinburgh | United Kingdom |
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| ID | Term |
|---|---|
| D013625 | Takayasu Arteritis |
| ID | Term |
|---|---|
| D001015 | Aortic Arch Syndromes |
| D001018 | Aortic Diseases |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| D001167 |
| Arteritis |
| D014657 | Vasculitis |
| D017445 | Skin Diseases, Vascular |
| D012871 | Skin Diseases |
| D017437 | Skin and Connective Tissue Diseases |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |