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The aim of this international study is to better understand how vestibular disorders affect daily life, including physical balance, vision and movement tolerance, emotional wellbeing, and cognitive functioning. Vestibular disorders are common but often difficult to diagnose because symptoms vary widely from one patient to another. To improve clinical care, we need large-scale information on the real-world experience of patients across different countries and clinical settings.
The UCLouvain Vertigo International Survey (UVIS) collects standardized information from adults with confirmed vestibular disorders, including questionnaires about dizziness-related handicap, emotional symptoms, and cognitive-vestibular complaints. Ear-nose-throat (ENT) specialists also provide routine clinical test results, such as caloric testing, vestibular evoked myogenic potentials (cVEMP and oVEMP), video head impulse tests (vHIT), and posturography. By combining these data, the study aims to identify different patient profiles and to examine how subjective symptoms relate to the physiological function of the vestibular system.
Participants take part during their routine clinical visit. They complete short questionnaires (on dizziness, anxiety, depression, cognitive symptoms, and daily functioning), and their ENT specialist encodes the results of the vestibular tests already performed as part of their usual care. No additional medical tests are required for the study.
By comparing data from several centers in Belgium, France, and the United States, this project seeks to provide a more complete picture of vestibular disorders worldwide and to support the development of better diagnostic tools and more personalized rehabilitation strategies.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Vestibular | Patients with vestibular loss diagnosed by senior ENT doctors with the gold standard ENT measures (caloric testing, head impulse test and/or vestibular evoked myogenic potential, ocular and cervical) | ||
| Healthy controls | People with no vestibular loss |
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| Measure | Description | Time Frame |
|---|---|---|
| Assessment of dizziness-related handicap | DHI - Dizziness Handicap Inventory (25 items; physical, functional, emotional subscales). Scores 0-100. Higher scores = greater handicap. | Through the entire study, approximately 36 months. |
| Assessment of emotional symptoms | HADS - Hospital Anxiety and Depression Scale (14 items; Anxiety and Depression subscales). Scores 0-21 per subscale. Higher scores = more symptoms | Through the entire study, approximately 36 months. |
| Assessment of cognitive-vestibular complaints | NVI - Neuropsychological Vertigo Inventory (22 items assessing cognitive-vestibular symptoms: attention, memory, spatial orientation, visuospatial abilities). Higher scores = more complaints | Through the entire study, approximately 36 months. |
| Measure | Description | Time Frame |
|---|---|---|
| Vestibular Physiological Function - canal paresis percentage | Through the entire study, approximately 36 months. | |
| Vestibular Physiological Function - cVEMP and oVEMP | Through the entire study, approximately 36 months. |
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For patients :
Inclusion Criteria:
Exclusion Criteria:
For healthy controls :
Inclusion criteria :
- Age between 18 and 90 years old.
Exclusion criteria:
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Vestibular loss diagnosed by senior ENT doctors
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Medical University of South Carolina | Charleston | South Carolina | 29425 | United States | ||
| Cliniques universitaires Saint-Luc |
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| ID | Term |
|---|---|
| D015837 | Vestibular Diseases |
| ID | Term |
|---|---|
| D007759 | Labyrinth Diseases |
| D004427 | Ear Diseases |
| D010038 | Otorhinolaryngologic Diseases |
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| Vestibular Physiological Function - video Head Impulse Test | Through the entire study, approximately 36 months. |
| Vestibular Physiological Function - Posturography | Through the entire study, approximately 36 months. |
| Brussels |
| Belgium |
| Hopital européen Marseille | Marseille | France |