Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
We are evaluating the caregiver support initiatives at a tertiary hospital in Singapore (Tan Tock Seng Hospital - TTSH) provided to caregivers caring for older patients.
The evaluation will focus on 1) evaluating the process / delivery / implementation of these initiatives to caregivers and 2) the outcomes of caregivers and their care recipients after receiving these caregiver support services at TTSH. Research questions are as follows:
Process evaluation:
How are the bundle(s) of caregiver support initiatives at TTSH delivered to caregivers?
What and how was impact achieved for these initiatives?
Outcome evaluation:
Did caregivers (and patients) benefit from these support initiatives and how?
Which aspects of the caregiver support initiatives are most beneficial to caregivers (and patients)?
Eligible caregivers will be invited to take part in the study and to complete 3 surveys and an optional interview over the period of their care recipients' hospital stay at TTSH, and 2 months after discharge. During their care recipients' stay, they may be introduced to any of the caregiver support initiatives, based on their needs. Caregivers enrolled in this study will take part in 3 surveys - 1 conducted at the beginning of care recipients' hospital stay, 1 conducted around the discharge period and 1 conducted one month after discharge. The aim of the surveys is to find out if caregivers have attended or used any of these services and whether they benefited from them.
This is a mixed method study that seeks to evaluate the bundle of caregiver support initiatives being provided to caregivers at TTSH, based on their needs. The evaluation will focus on 1) evaluating the process / delivery / implementation of these initiatives to caregivers and 2) the outcomes of caregivers and their care recipients after receiving these caregiver support services at TTSH. Research questions are as follows:
Process evaluation:
How are the bundle(s) of caregiver support initiatives at TTSH delivered to caregivers?
What and how was impact achieved for these initiatives?
Outcome evaluation:
Did caregivers (and patients) benefit from these support initiatives and how?
Which aspects of the caregiver support initiatives are most beneficial to caregivers (and patients)?
Quantitative methods:
Eligible caregivers will be invited to take part in the study and to complete 3 surveys and an optional interview over the period of their care recipients' hospital stay at TTSH, and 2 months after discharge. During their care recipients' stay, they may be introduced to any of the caregiver support initiatives, based on their needs. Caregivers enrolled in this study will take part in 3 surveys - 1 conducted at the beginning of care recipients' hospital stay, 1 conducted around the discharge period and 1 conducted one month after discharge. The aim of the surveys is to find out if caregivers have attended or used any of these services and whether they benefited from them.
We hypothesise that caregivers outcomes, for e.g. caregivers' knowledge, preparedness to provide care and well-being will be increased for those who have used or attended the initiatives recommended for them by the hospital and caregivers' stress, anxiety, depression, will decrease after receiving these caregiver support initiatives. We also hypothesise that the time spent on caregiving will decrease for those who have used or attended the hospital's caregiver support services and initiatives.
As some of the caregiver initiatives may be progressively implemented at TTSH over the study period, the study will capture data from caregivers who did not receive these initiatives with those who have received them when these initiatives were made available at the hospital.
We will also seek patients' consent to use their data in EPIC for research purposes. We hypothesise that patients' re-admission and visits to the ED post-discharge will be reduced.
Qualitative Methods:
Through the optional interviews with caregivers, either before or after discharge of the care recipients, we aim to ask the following research questions:
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention arm | Experimental | Participants receive the following interventions as deemed appropriate based on their caregiving and learning needs:
|
|
| Control Arm | Placebo Comparator | Participants in this group will receive standard caregiver support |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Caregiver Support Model | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| Preparedness for Caregiving Scale | 8-item scale measuring caregiver preparedness for caregiving. Average score ranges from 0 - 4, higher score indicating better preparedness for caregiving | 1 month |
| Caregiver Resourcefulness Scale | 8-item scale measuring caregiver resourcefulness. Total score calculated ranging from 8 - 40 with higher scores indicating higher resourcefulness | 1 month |
| Zarit Burden Scale - 12 Item | 12-item scale measuring caregiver burden. Total score calculated range from 0-48, with higher scores indicating higher burden | 1 month |
| Measure | Description | Time Frame |
|---|---|---|
| Hospital Anxiety and Depression Scale | 14-item scale measuring anxiety and depression. Anxiety measured over 7 items, with score ranging from 0-21, with higher scores indicating higher anxiety. Depression measured over 7 items, with score ranging from 0-21, with higher scores indicating higher depression | 1 month |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| George Glass | Contact | +65 6903 5384 | glass_george_frederick@ttsh.com.sg |
Not provided
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Tan Tock Seng Hospital | Recruiting | Singapore | Singapore |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 30979516 | Background | Chan EY, Phang KN, Glass GF Jr, Lim WS. Crossing, Trudging and Settling: A phenomenological inquiry into lived experience of Asian family caregivers of older persons with dementia. Geriatr Nurs. 2019 Sep-Oct;40(5):502-509. doi: 10.1016/j.gerinurse.2019.03.015. Epub 2019 Apr 9. | |
| 35285537 | Background | Chan EY, Glass GF Jr. Delivering a holistic hospital-to-home framework to support family caregivers of persons with dementia: Protocol for a feasibility study. J Adv Nurs. 2022 May;78(5):1513-1523. doi: 10.1111/jan.15210. Epub 2022 Mar 14. |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
|
| Standard caregiver support | Other | Participants are provided standard bedside caregiver education as appropriate and information reinforcement through leaflets and booklets |
|
| EQ5D-5L |
5-level EQ-5D version to measure mobility, self-care, usual activities, pain/discomfort and anxiety/depression of participants. This includes the EQ VAS, recording self-rated health on a vertical visual analogue scale where the endpoints are labelled 'The best health you can imagine' and 'The worst health you can imagine'. |
| 1 month |
| 35854296 | Background | Chan EY, Wu LT, Ng EJY, Glass GF Jr, Tan RHT. Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme: a feasibility study on Carer Matters. BMC Health Serv Res. 2022 Jul 19;22(1):933. doi: 10.1186/s12913-022-08317-3. |
| 37226459 | Background | Loke SXY, Chew EYH, Siew AL, Glass GF Jr, Chan EY. Transiting Back Home: Caregivers' Lived Experiences in Caring for Loved Ones on the Nasogastric Tube in the Home-Setting in Singapore. J Transcult Nurs. 2023 Sep;34(5):343-355. doi: 10.1177/10436596231175163. Epub 2023 May 24. |
| 36419224 | Background | Kwok MWS, Glass GF Jr, Loke S, Loi JN, Chan EY. I see, I learn, I do: Development and evaluation of a video-enhanced nasogastric tube feeding training programme for caregivers. Nurs Open. 2023 Apr;10(4):2357-2365. doi: 10.1002/nop2.1491. Epub 2022 Nov 23. |
| 39695613 | Background | Wu LT, Glass GF Jr, Chew EYH, Ng EJY, Chan EY. Developing a theory of change to guide the design and implementation of a caregiver-centric support service. BMC Health Serv Res. 2024 Dec 18;24(1):1620. doi: 10.1186/s12913-024-11931-y. |
| 36554924 | Background | Chew EYH, Ong ZL, Glass GF Jr, Chan EY. '24/7' Caregiving: A Qualitative Analysis of an Emerging Phenomenon of Interest in Caregiving. Int J Environ Res Public Health. 2022 Dec 19;19(24):17046. doi: 10.3390/ijerph192417046. |
| 30498832 | Background | Chan EY, Glass G, Chua KC, Ali N, Lim WS. Relationship between Mastery and Caregiving Competence in Protecting against Burden, Anxiety and Depression among Caregivers of Frail Older Adults. J Nutr Health Aging. 2018;22(10):1238-1245. doi: 10.1007/s12603-018-1098-1. |
| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| ID | Term |
|---|---|
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
Not provided
Not provided