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Historically, most pathologists have had little direct contact or communication with patients. In the past two decades, however, there has been a modest movement toward patient-pathologist visits in which pathologists review with patients their pathology slides.
Very few studies of such encounters have been conducted. Most surveyed patients reported that the experience was positive and helpful to them. Our basic goal is to determine if such meetings are useful to patients; a secondary goal is to determine if such encounters are useful to, and practical for, pathologists.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Assessment of Patient understanding of Pathologist input | Other | Assessment of patient understanding of, and sense of control regarding, their disease, and their perception of the potential benefit of having pathologists on their medical team. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Questionnaires of Patient understanding of Pathologist input | Other |
|
| Measure | Description | Time Frame |
|---|---|---|
| Participant self-rating of understanding of, and empowerment in relation to, their disease, as measured using pre and post-visit knowledge questionnaires, and survey after meeting with a pathologist. | Determine understanding improvement from pre-meeting questionnaires and after pathologist visit with post-visit questionnaires, as well as knowledge questionnaire for both timepoints. Knowledge Questionnaire: Primary Score: Total Score - Total # correct responses on the knowledge questions (12 items total). Survey for Patients after Meeting with Pathologist Primary Score: Item 1 Total Score - Responses will be coded on a 0-4 scale where 0=strongly disagree and 4=strongly agree, and the total will be calculated across items 'a' through 'j' of Item 1. | 1-2 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Participant knowledge of their personal disease characteristics | Determined by participant completing pre-and-post visit Knowledge Questionnaires. Knowledge Questionnaire: Primary Score: Total Score - Total # correct responses on the knowledge questions (12 items total). | 1-2 weeks |
| Participant general knowledge of breast cancer pathology |
| Measure | Description | Time Frame |
|---|---|---|
| Participant ratings of helpfulness and other features of meeting with a pathologist such as comfort level with the meeting | Determined by participant completing post-visit survey. Survey for Patients after Meeting with Pathologist Primary Score: Item 1 Total Score - Responses will be coded on a 0-4 scale where 0=strongly disagree and 4=strongly agree, and the total will be calculated across items 'a' through 'j' of Item 1. |
Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Research Nurse | Contact | 800-639-6918 | cancer.research.nurse@hitchcock.org |
| Name | Affiliation | Role |
|---|---|---|
| Edward J Gutmann, MD | Dartmouth-Hitchcock Medical Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Dartmouth-Hitchcock Medical Center | Recruiting | Lebanon | New Hampshire | 03756 | United States |
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| ID | Term |
|---|---|
| D001943 | Breast Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D001941 | Breast Diseases |
| D012871 | Skin Diseases |
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To determine whether meeting with a pathologist to review and discuss the pathologic findings in their breast samples is beneficial to breast cancer patients.
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|
Determined by participant completing pre-and-post visit Knowledge Questionnaires. Knowledge Questionnaire: Primary Score: Total Score - Total # correct responses on the knowledge questions (12 items total). |
| 1-2 weeks |
| 1-2 weeks |
| Participant anxiety self-rating | Determined by participant completing State Trait Anxiety Inventory (STAI). STAI Form Y-1 contains 40 items, each given a self-reported rating of 1-4, with 1: "Not at all", 2: "Somewhat, 3: "Moderately so", and 4: "Very much so". | 1-2 weeks |
| Pathologist rating of patient benefit from the meeting and other features of the meeting such as degree to which rapport was established. | Determined by pathologist completing the post-visit survey. Survey for Pathologist After Meeting with Patient Primary Score: Total Score on Items 6 and 7 (8 items total) - Responses will be coded on a 0-4 scale where 0=highly dissatisfied and 4=highly satisfied, and the total will be calculated for items 6 and 7. | 1-2 weeks |
| D017437 |
| Skin and Connective Tissue Diseases |