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| Name | Class |
|---|---|
| Genentech, Inc. | INDUSTRY |
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Food Allergies affect 8% of children and 11% of adults, and there are increasing trends worldwide. Suffering food allergies reduces the quality of life and increases ED visits, hospitalizations, and mortality. Minorities in the United States suffer an increased food allergy burden, with higher prevalence, morbidity, and decreased use of preventive measures. Limited information is available in Puerto Rico. Moreover, advances in food allergy diagnostics, prevention, and treatment offer new hope for patients. We aim to develop a de-identified physician-diagnosed food allergy registry in Puerto Rico to characterize the food allergy population demographics, comorbidities, healthcare use, treatment, and quality of life. Our second aim is to educate patients with web-based posts to improve knowledge and awareness of food allergies.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Food Allergy |
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| Measure | Description | Time Frame |
|---|---|---|
| Participant Questionnaire | Demographics Food Allergy Diagnosis Food Allergy Reactions Most Recent Food Allergy Reaction Specific Food Allergy Comorbidities Management Quality of Life Educational Component | 25 min |
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Inclusion Criteria:
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Food Allergy age 0 to 100 years
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Sylvette Nazario, MD | Contact | 787-448-8420 | sylvette.nazario@upr.edu | |
| Bonnie Telon Sosa, MPH | Contact | 787-619-5712 | bonnie.telon@upr.edu |
| Name | Affiliation | Role |
|---|---|---|
| Sylvette Nazario, MD | Universidad de Puerto Rico - Recinto de Ciencias Médicas | Principal Investigator |
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| ID | Term |
|---|---|
| D005512 | Food Hypersensitivity |
| D006967 | Hypersensitivity |
| ID | Term |
|---|---|
| D006969 | Hypersensitivity, Immediate |
| D007154 | Immune System Diseases |
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