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This study explores how much families with children who have Down Syndrome in Egypt know about the benefits and role of physical therapy. By understanding their awareness, hope to improve education and support so that these families can better access physical therapy services that can help improve their children's quality of life.
This cross-sectional study aims to assess the awareness of families with children who have Down Syndrome regarding the role of physical therapy in Egypt. Data will be collected via a validated questionnaire distributed to family members to evaluate their knowledge and perceptions about physical therapy interventions. The study seeks to identify gaps in awareness and inform strategies for improving educational outreach and support for these families.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Families of Children with Down Syndrome | This group consists of family members (parents or primary caregivers) of children diagnosed with Down Syndrome. Participants will be surveyed to assess their awareness and knowledge about the role of physical therapy in managing developmental challenges associated with Down Syndrome. No interventions will be conducted as part of this study. |
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| Measure | Description | Time Frame |
|---|---|---|
| Awareness Level of Families About the Role of Physical Therapy | This measure assesses the level of knowledge and awareness that family members of children with Down Syndrome have regarding physical therapy's benefits and role in improving their children's development and quality of life. It is evaluated through a validated questionnaire designed to capture understanding of physical therapy interventions and perceptions. | "Baseline (single assessment using questionnaire at the beginning of the study)" |
| Measure | Description | Time Frame |
|---|---|---|
| Factors Influencing Awareness of Physical Therapy Among Families | This measure evaluates demographic, social, and educational factors that may affect the awareness levels of families with children who have Down Syndrome about physical therapy. It includes analysis of variables such as caregiver education level, access to healthcare information, and previous exposure to physical therapy services. | "Baseline (single assessment using questionnaire at the beginning of the study)" |
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Inclusion Criteria:
Exclusion Criteria:
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This study includes family members and primary caregivers of children with Down Syndrome in Egypt. The participants will complete a questionnaire designed to assess their awareness of the role of physical therapy in managing developmental challenges.
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| Name | Affiliation | Role |
|---|---|---|
| Maya G Aly, Assistant Professor | Cairo University | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Faculty of Physical Therapy, Cairo University | Giza | Cairo Governorate | 11432 | Egypt |
Individual participant data (IPD) will not be shared with other researchers to protect participant confidentiality and privacy. The data collected will only be used for the purpose of this study.
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| ID | Term |
|---|---|
| D004314 | Down Syndrome |
| D030342 | Genetic Diseases, Inborn |
| ID | Term |
|---|---|
| D008607 | Intellectual Disability |
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D009422 | Nervous System Diseases |
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| D000015 | Abnormalities, Multiple |
| D000013 | Congenital Abnormalities |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D025063 | Chromosome Disorders |