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The objective of this study is to determine the level of community participation of people with post-stroke aphasia and their caregivers, as well as the factors that facilitate or interfere with this participation in the Valladolid region (Spain).
The main questions that this study aims to answer are:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| people with aphasia post stroke | |||
| Caregivers of people with aphasia post stroke |
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| Measure | Description | Time Frame |
|---|---|---|
| Activity Card Sort | The Activity Card Sort will determine the level of participation maintained by people with aphasia and their caregivers at the time of the assessment. It will provide data on overall participation, as well as participation in leisure, social, educational, and work activities. The Activity Card Sort scale scores range from 0 to 100%. Higher percentages, better. | Baseline |
| Measure | Description | Time Frame |
|---|---|---|
| The Western Aphasia Battery (WAB) | The Western Aphasia Battery (WAB) is a tool used to assess the linguistic skills (information content, fluency, auditory comprehension, repetition, naming and word finding, reading, and writing) and nonlinguistic skills (drawing, block design, calculation, and praxis) of adults with aphasia. This provides information for the diagnosis of the type of aphasia. The Western Aphasia Battery uses an Aphasia Quotient (AQ) to assess the severity of aphasia, with scores ranging from 0 to 100. Higher score, less severity of aphasia. |
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Inclusion Criteria:
Exclusion Criteria:
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The participants in the study (people with aphasia and their caregivers) will be drawn from the registry of people treated at the companies CIRONBRAIN and CIRONLAB, which comprise the research team. Sample recruitment will also be conducted through CIRONBRAIN's social media channels, and through requests for collaboration with local disability organizations and healthcare professionals in the Valladolid region who are familiar with the project and who may be eligible for selection.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Jorge Alegre-Ayala, Ph.D OTR | Contact | +34680274889 | jalegreayala@cironrehabilitacion.es |
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| ID | Term |
|---|---|
| D020521 | Stroke |
| D001037 | Aphasia |
| D003147 | Communication Disorders |
| ID | Term |
|---|---|
| D002561 | Cerebrovascular Disorders |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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| Baseline |
| Barthel Index (BI) | The BI assesses the level of functional independence in basic activities of daily living (eating, hygiene, dressing, mobility, etc.). Barthel index scores range from 0 to 100 points. Higher scores, better. | Baseline |
| Zarit Caregiver Burden Interview (ZBI) | The aim of the Zarit Caregiver Burden Interview (ZBI) is to assess the perceived burden experienced by caregivers, particularly in terms of the physical, emotional, social, and financial impacts of caregiving. The Zarit Caregiver Burden Interview scale scores range from 22 to 110 points. Higher scores indicate worse outcomes. | Baseline |
| Six-Minute Walk Test (6MWT) | The Six-Minute Walk test aims to assess a person's functional exercise capacity by measuring the distance they can walk in six minutes on a flat surface. Higher score, better. | Baseline |
| Ten-Meter Walk Test (10MWT) | The Ten-Meter Walk Test evaluates walking speed over a short distance (10 meters). This scale provides data on normal speed and fast speed. Higher speed, better. | Baseline. |
| Hospital Anxiety and Depression Scale | The purpose of the Hospital Anxiety and Depression Scale is identify depression and anxiety among physically ill patients, through a brief questionnaire which involves both dimensions. The scoring of the Hospital Anxiety and Depression Scale 0-21 for each subscale, with higher scores indicating greater anxiety or depression. | Baseline |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
| D013064 | Speech Disorders |
| D007806 | Language Disorders |
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |