Validation of the French Version of the Primary Lateral Sclerosis Functioning Rating Scale (PLSFRS)

Validation of the French Version of the PLSFRS Scale

This is a national, multicentric, prospective, descriptive study evaluating the psychometric properties of the French version PLSFRS scale

This is a prospective study conducted in 8 French ALS centers which will enroll 80 patients with PLS. All these patients will undergo an evaluation of their functional status from the ALSFRS-r and PLSFRS scales. All patients will be evaluated at 3 time points (T0,M6 at the outpatient clinic) and at M3 remotely. The aim of the study will be to validate a trans-cultural and psychometric version of the PLSFRS available for the French PLS population.

Inclusion Criteria:

• Patients with primary lateral sclerosis (PLS)
• Age over 18 years
• Informed consent signed
• Patients cared in a French ALS centre

Exclusion Criteria:

• patients with no oral and written command of the French language
• Patients unable to answer a questionnaire
• Opposition to data processing