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The effects of Duchenne muscular dystrophy and its treatments on executive functions and occupational performance are under-mentioned in the literature. The researches believe that developmental and cognitive research is needed to identify interventions for children with DMD to identify and adapt to both individual and social environments, including self-care, productivity and leisure activities. Therefore, the aim of this study was to examine executive functions and occupational performance in children with DMD and compare them with healthy controls.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Children with Duchenne muscular dystrophy |
| ||
| Healthy control group of children |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Evaluations | Other | Evaluations of executive functions and occupational performance |
|
| Measure | Description | Time Frame |
|---|---|---|
| Demographic information form | one-time evaluation | |
| Brooke upper extremity functional scale | It will be used to assess the functional level of the upper limbs of children with DMD. The classification consists of six stages and progression from the first to the sixth stage indicates a decrease in the functionality of the upper limb. | one-time evaluation |
| Vignos lower extremity functional scale | It will be used to assess the functional level of the lower limbs of children with DMD. The classification consists of ten stages and progression from the first to the tenth stage indicates a decrease in the functionality of the upper limb. | one-time evaluation |
| The Childhood Executive Functioning Inventory | This 26-item scale consists of 4 subscales: working memory (9 items), planning (6 items), inhibition (6 items) and regulation (5 items). Working memory and planning sub-dimensions constitute the total score of "working memory" and inhibition and regulation sub-dimensions constitute the total score of "inhibition". As the score obtained from the scale increases, the child's executive functions weaken. | one-time evaluation |
| Canadian Occupational Performance Measure | It will be used to assess children's occupational performance. | one-time evaluation |
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Inclusion Criteria:
Exclusion Criteria:
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All boys diagnosed with DMD between the ages of 6-12 years constitute the population of this study.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Lokman Hekim University | Ankara | Çankaya | 06510 | Turkey (Türkiye) |
Patient data in this study will not be shared with other researchers. The results of the study will be shared after anonymizing the demographic information of DMD and healthy children.
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| ID | Term |
|---|---|
| D020388 | Muscular Dystrophy, Duchenne |
| ID | Term |
|---|---|
| D009136 | Muscular Dystrophies |
| D020966 | Muscular Disorders, Atrophic |
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
| D009468 | Neuromuscular Diseases |
| D009422 | Nervous System Diseases |
| D040181 | Genetic Diseases, X-Linked |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
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