Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
The investigators are conducting a participatory study with and for parents after child loss during pregnancy or birth. Their aim is to develop treatment recommendations for healthcare professional. These focus on question, how to deal with parents when experiencing child loss.
The entire study is following a participatory approach and including parents after stillbirth in the research team. Along a co-creative design, the investigators planned a multistep-explorative mixed-methods study.
In detail, three key steps will be conducted. First, workshops and focus groups will be carried out to identify central needs of affected parents. Afterwards, one investigator will interview the parents narratively to gain an in-depth understanding of their experiencs. Finally, these findings will be summarized and translated into treatment recommendations for healthcare professionals.
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Parents after intrauterine or perinatal child loss |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Workshops | Other | The investigators will conduct workshops with parents to get closer to the main topic. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Parent's experience | The investigators are interested in parents' in-depth and lived experience before and during their intrauterine or perinatal child loss. | During pregnancy and up to 7 days after birth |
| Measure | Description | Time Frame |
|---|---|---|
| Parents' subjective needs | In qualitative interviews, the subjective needs that parents developed before and during their intrauterine or perinatal child loss will be investigated. | During pregnancy and up to 7 days after birth |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Parents (mothers, fathers) will be recruited that lost their child during pregnancy or birth in hospitals, at home or birth houses.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Fritz Sterr, M.Sc. | Contact | +49-991-3615-8344 | fritz.sterr@th-deg.de | |
| Julian Siepmann, M.Sc. | Contact | +49-991-3615-8368 | julian.siepmann@th-deg.de |
| Name | Affiliation | Role |
|---|---|---|
| Christian Rester, Prof. Dr. | Deggendorf Institute of Technology | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Deggendorf Institute of Technology, Faculty of Applied Healthcare Sciences | Recruiting | Deggendorf | Bavaria | 94469 | Germany |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 42121131 | Derived | Siepmann J, Bauernfeind L, Nuber-Fischer D, Rester C, Gensheimer K, Sterr F. Needs of parents during their intrauterine or perinatal child loss - a qualitative multi-method study. BMC Public Health. 2026 May 12;26(1):1526. doi: 10.1186/s12889-026-27687-5. | |
| 41350907 | Derived | Sterr F, Siepmann J, Nuber-Fischer D, Rester C, Gensheimer K, Bauernfeind L. Parents' experience of child loss during pregnancy or birth: protocol for an explorative, sequential and participative mixed-methods study. Res Involv Engagem. 2025 Dec 5;11(1):139. doi: 10.1186/s40900-025-00819-8. |
| Label | URL |
|---|---|
| Landing Page of the Study | View source |
Not provided
The data to be collected is particularly sensitive and is stored securely and deleted after the study. Individual pseudonymised excerpts are made public in the publications.
Not provided
Not provided
Not provided
Not provided
Not provided
| ID | Term |
|---|---|
| D050497 | Stillbirth |
| D005313 | Fetal Death |
| D000022 | Abortion, Spontaneous |
| ID | Term |
|---|---|
| D011248 | Pregnancy Complications |
| D005261 | Female Urogenital Diseases and Pregnancy Complications |
| D000091642 | Urogenital Diseases |
| D003643 | Death |
Not provided
Not provided
Not provided
Not provided
Not provided
| Focus group interviews | Other | The investigators will conduct focus group interviews with parents on their needs before and during child loss. |
|
| Narrative interviews | Other | The investigators will conduct narrative interviews with parents to gain an in-depth understanding of their lived experience before and during the intrauterine or perinatal child loss. |
|
| Delphi approach | Other | The investigators will carry out a Delphi approach with parents to translate and confirm or revise the findings into treatment recommendations for healthcare professionals. |
|
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |