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The goal of this clinical trial is to learn the long-term effects of "Family Walking Instruction with Support by Heart" (Family WISH) on frailty state, quality of life and family functioning among adolescents with congenital heart disease (CHD).
Researchers will compare the 12-week Family WISH program, based on self-efficacy theory, to a comparison group receiving a family walking health education sheet to evaluate the long-term effectiveness of the Family WISH program.
Participants will:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Experimental group | Experimental | Experimental group: a 12-week Family WISH program | |
| Comparison group | Sham Comparator | Comparison group: a family walking health education sheet received |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Family Walking Instruction with Support by Heart (Family WISH) program | Behavioral | Researchers will compare the 12-week Family WISH program, based on self-efficacy theory, to a comparison group receiving a family walking health education sheet to evaluate the long-term effectiveness of the Family WISH program. |
| Measure | Description | Time Frame |
|---|---|---|
| frailty state | self-reported questionnaire completed | at baseline, and at 6, 12, and 24 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| quality of life and family functioning | self-reported questionnaires completed | at baseline, and at 6, 12, and 24 weeks |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Chi-Wen Chen, PhD | Contact | 011-886-228267348 | chiwenchen@nycu.edu.tw |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| College of Nursing, National Yang Ming Chiao Tung University | Taipei | 112304 | Taiwan |
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| ID | Term |
|---|---|
| D006330 | Heart Defects, Congenital |
| ID | Term |
|---|---|
| D018376 | Cardiovascular Abnormalities |
| D002318 | Cardiovascular Diseases |
| D006331 | Heart Diseases |
| D000013 | Congenital Abnormalities |
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To ensure assessor blinding, different personnel conducted the interventions and outcome assessments.
| Comparison group | Behavioral | a family walking health education sheet received |
|
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |