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The primary objective of the Copenhagen Pancreatic Cancer (COPAN) study is to describe the real-world population of patients with pancreatic cancer (PC). Larger sample of longitudinal real-world data provides a unique opportunity for comprehensive exploration of the diagnostic and treatment journey for individuals diagnosed with PC and allows to investigate treatment outcomes and associated prognostic factors. Furthermore, the study aims to identify determinants of treatment management and treatment outcomes, including patient-reported outcomes.
The study objective is to describe the real-world population of patients with pancreatic cancer by collecting longitudinal data that facilitates a more rigorous understanding of the PC. This research project will catalog different elements of a patient's diagnostic and treatment journey and identify unmet needs of patients with PC.
The study aims to:
8. To investigate the impact of PC and treatment on patients' quality of life.
4 Study Design This study of patients with PC will employ both a prospective, observational design and retrospective design to capture real-world data relating to health status and/or the delivery of health care routinely collected from a variety of sources. Data will be collected longitudinally, allowing for a dynamic analysis of the disease trajectory.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with PC are referred to Comprehensive Pancreatic Cancer Center at Herlev Hospital |
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| Measure | Description | Time Frame |
|---|---|---|
| Overall survival | 3 years |
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Inclusion Criteria:
Histologically confirmed pancreatic cancer
Exclusion Criteria:
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All patients with pancreatic cancer referred to Department of Oncology, Herlev Hospital, Denmark within the study period will be invited to participate.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Inna Markovna Inna Markovna Chen, MD, Herlev & Gentofte Hospital, MD | Contact | +45 3868-2898 | Inna.Chen@regionh.dk |
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| ID | Term |
|---|---|
| D010190 | Pancreatic Neoplasms |
| ID | Term |
|---|---|
| D004067 | Digestive System Neoplasms |
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D004701 | Endocrine Gland Neoplasms |
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| D004066 |
| Digestive System Diseases |
| D010182 | Pancreatic Diseases |
| D004700 | Endocrine System Diseases |