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A lot of information is known about how the perimenopause and menopause affects able bodied women. However there is very little information about how these affects women with spinal cord injury. This questionnaire study aims to collect information from women with a spinal cord injury on their experiences of going through the perimenopause and/or the menopause.
There is widespread knowledge and information about the perimenopause and menopause, its symptoms and treatment; all of this is for people without spinal cord injury (women will be used to denote all people who can or have undergone the perimenopause and menopause). There is paucity of data about this condition in women with spinal cord injury. These women are living longer lives and should be supported to live a healthy life.
Some studies have suggested that women with Spinal Cord Injury (wSCI) may undergo the perimenopause and menopause earlier than those without, however others have concluded that the age at the perimenopause and menopause is no different. wSCI may suffer less with vasomotor symptoms due to their ability to manage the symptoms of autonomic dysreflexia; however they may have more genito-urinary symptoms; also due to the need for self-catheterisation.
Hormone Replacement Therapy (HRT) has many benefits including reduction in risk of fractures by slowing down the development of osteoporosis, thereby reducing fracture risk and morbidity. Reduced mobility also puts them at an increased risk of cardio-vascular disease.
This study aims to gain information about these characteristics of the perimenopause and menopause in wSCI; the age at which they become menopausal and the most bothersome symptoms for them, treatment options offered to them as well as details of their spinal cord injury.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Women with Spinal Cord Injury | Women with Spinal Cord Injury who are currently going through or have gone through the Perimenopause/Menopause |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Questionnaire | Behavioral | Questionnaire study |
|
| Measure | Description | Time Frame |
|---|---|---|
| To collect more information on determine signs, symptoms and severity of these signs and symptoms of the perimenopause and menopause in women with spinal cord injury |
| 1 time point |
| Measure | Description | Time Frame |
|---|---|---|
| To collect more information on establish how SCI affects the experience of the perimenopause and menopause |
| 1 time point |
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Inclusion Criteria:
• Patient is willing and able to give informed consent for participation in the study (or verbally confirm they wish to take part if someone completing on their behalf)
Exclusion Criteria:
women will be used to denote all people who can or have undergone the perimenopause and menopause
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women will be used to denote all people who can or have undergone the perimenopause and menopause and have a clinical diagnosis of a spinal cord injury
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Sucheta Iyengar, BM | Contact | 01296 831378 | bht.research@nhs.net | |
| James Cooper, BSc, MSc | Contact | 07816020305 | james.cooper9@nhs.net |
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| ID | Term |
|---|---|
| D013119 | Spinal Cord Injuries |
| ID | Term |
|---|---|
| D013118 | Spinal Cord Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D020196 | Trauma, Nervous System |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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| D014947 | Wounds and Injuries |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |