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PURPOSE:
To estimate the relationships between the child, parents, and family factors and parent stress and QoL among parents of children with diplegic CP.
BACKGROUND:
Cerebral palsy (CP) is considered the primary reason of motor impairment among children worldwide. Compared to parents of typically developing children, parents of children with cerebral palsy (CP) experience higher levels of stress and reduced quality of life (QoL).
HYPOTHESES:
There is no relation between the level of functional impairment among children with diplegic CP and their parental stress and QOL.
RESEARCH QUESTION:
Is there a relationship between the level of functional impairment among children with diplegic CP and the degree of their parental stress and quality of life?
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| 1 Group of parents of children with diplegic cerebral palsy | Parents of children between the ages of 2 and 4.8 who had been diagnosed with diplegic CP and were in a stable clinical and medical state will be included in this study. However, parents of children with behavioral problems, a history of ongoing heart disease, a botulinum toxin injection within the six months previous to the study, chronic chest disease, significant visual or auditory impairment, or parents with limited literacy will not allowed to participate in the study |
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| Measure | Description | Time Frame |
|---|---|---|
| Parental stress | Parental stress will be measured by the Arabic version of the parent stress index-short form (PSI-SF) . PSI-SF is a self-reported questionnaire with 36 items rated on a 5-point Likert scale (strongly agree or strongly disagree). The score of the measure ranged between 36 and 180, and a lower score indicates a better outcome. | 1 day - one session |
| Measure | Description | Time Frame |
|---|---|---|
| Quality of life of parents | Quality of life (QoL) will be measured by the family impact module (PedsQL) and quality-of-life inventory. | 1 day - one session |
| Gross motor impairments | Gross motor impairments will be assessed via gross motor classification system |
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Inclusion Criteria:
Parents of children between the ages of 2 and 4.8 who had been diagnosed with diplegic CP.
Exclusion Criteria:
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Parents of Children with diplegic CP age range 2 to 4.5
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Sinai University | Ismailia | Egypt |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 33705176 | Result | Dubois-Comtois K, St-Onge J, St-Laurent D, Cyr C. Paternal distress and child behavior problems in low-SES families: Quality of father-child interactions as mediators. J Fam Psychol. 2021 Sep;35(6):725-734. doi: 10.1037/fam0000830. Epub 2021 Mar 11. | |
| 28267854 | Result | Villamor E, Tedroff K, Peterson M, Johansson S, Neovius M, Petersson G, Cnattingius S. Association Between Maternal Body Mass Index in Early Pregnancy and Incidence of Cerebral Palsy. JAMA. 2017 Mar 7;317(9):925-936. doi: 10.1001/jama.2017.0945. |
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Privacy Concerns: IPD can be very detailed and contain sensitive information about participants, such as their medical history, diagnoses, and treatment responses. Sharing this data could potentially identify participants, even if it is de-identified. This can be a major concern, especially for studies involving rare diseases or conditions.
Data Security: Making IPD publicly available raises risks of data breaches or unauthorized access. Researchers need to be confident they have robust security measures in place to protect sensitive participant information.
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| ID | Term |
|---|---|
| D002547 | Cerebral Palsy |
| ID | Term |
|---|---|
| D001925 | Brain Damage, Chronic |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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| 1 day - one session |