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| ID | Type | Description | Link |
|---|---|---|---|
| LHÜ | Other Identifier | LHÜ |
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| Name | Class |
|---|---|
| Hacettepe University | OTHER |
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This research aims to improve the quality of life, occupational performance, occupational satisfaction and emotional health of young people with Duchenne muscular dystrophy compared to the classical occupational therapy program. The findings are planned to shed light on the development of new and effective strategies in the rehabilitation of adolescents with Duchenne muscular dystrophy.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Experimental group | Experimental | Gamified occupational therapy programme group |
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| Control group | Other | Classic occupational therapy group |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Gamified occupational therapy programme | Other | Gamified occupational therapy program for the experimental group and classical occupational therapy program for the control group, which will be applied to both groups for eight weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Demographic information form | At the start of the evaluations | |
| Modified Mini Mental State Test | before and after the eight-week intervention programs | |
| Vignos lower extremity functional scale | This scale was developed to assess the level of ambulation in neuromuscular diseases and consists of 10 stages. In this scale, the ambulation level of the person decreases from the first stage to the tenth stage. | before and after the eight-week intervention programs |
| Brooke upper extremity functional classification scale | This scale was developed to assess the functional levels of the upper extremity in neuromuscular diseases and consists of 6 stages. In this scale, progression from the first stage to the sixth stage indicates a decrease in the functionality of the upper extremity. | before and after the eight-week intervention programs |
| The Pediatric Quality of Life Inventory 3.0 Neuromuscular Module | before and after the eight-week intervention programs | |
| Canadian Occupational Performance Measure | before and after the eight-week intervention programs | |
| Children's Depression Inventory | Consisting of 27 items and using a 3-point Likert-type scale, this scale assesses the depression levels of children between the ages of 6-17. The total score of the scale, which measures the emotional state in the last 2 weeks, is 54 and the severity of depression increases as the total score increases. The cut-off value of the scale was determined as 19 points. |
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Inclusion Criteria:
Exclusion Criteria:
Duchenne muscular dystrophy occurs mostly in boys and very rarely in girls. Girls are usually carriers.
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Başak Çağla Arslan, Master Degree | Contact | 4448548 | ptbasakc@gmail.com |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Lokman Hekim University | Recruiting | Ankara | 06510 | Turkey (Türkiye) |
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| ID | Term |
|---|---|
| D020388 | Muscular Dystrophy, Duchenne |
| ID | Term |
|---|---|
| D009136 | Muscular Dystrophies |
| D020966 | Muscular Disorders, Atrophic |
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
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Randomised control trial
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| Classic occupational therapy programme | Other | Gamified occupational therapy program for the experimental group and classical occupational therapy program for the control group, which will be applied to both groups for eight weeks |
|
| before and after the eight-week intervention programs |
| The Pediatric Quality of Life Inventory Multidimensional Fatigue Scale | This scale consists of 18 items and 3 subsections: general fatigue (6 items), fatigue during sleep/rest (6 items) and cognitive fatigue (6 items). Separate scores can be calculated for each subsection and the total score is obtained by summing the scores obtained from these sections. High scores indicate low fatigue. | before and after the eight-week intervention programs |
| The Numeric Rating Scale - Pain | This scale uses a 10-centimeter line. The left beginning of the line represents "no pain" (0 points) and the end of the line represents "excruciating pain" (10 points). | before and after the eight-week intervention programs |
| D009468 | Neuromuscular Diseases |
| D009422 | Nervous System Diseases |
| D040181 | Genetic Diseases, X-Linked |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |