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| Name | Class |
|---|---|
| National Institute for Health Research, United Kingdom | OTHER_GOV |
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Falls can have a significant impact on the lives of adults with intellectual disabilities. The ACTION FALLS programme is a systematic falls management intervention that has been shown to be of benefit for older people however this programme in its current form needs to be adapted for use with adults with intellectual disabilities who have specific risk factors for falling and specific actions to reduce these risks. An adapted version of the programme to account for the different needs of adults with intellectual disabilities and the different services and support networks they access will be developed. A draft programme has been developed based on the views of adults with learning disabilities, carers and clinicians. This programme will now be tried out to see how easy it is to use. Adults with an intellectual disability, clinicians and carers will try out the programme and will be asked to give verbal feedback on their views on how easy it is to complete and what could be improved.
The draft ACTION FALLS programme that will be used in this proof-of-concept study includes the following sections:
Section one has been designed to be able to be used by adults with an ID and their carers independently of a clinical service. Additionally, section one could be used to support a clinical assessment in a clinical team to capture the views of adults with an ID. Section two has been designed to be used by a healthcare professional undertaking a more detailed assessment with adults with an ID.
There will be two components of work to explore views and acceptability of both the sections of the programme and how they work independently and together.
Component One:
Up to 10 clinicians will be recruited. The clinicians will be working in the ID service within Nottinghamshire Healthcare NHS Foundation Trust and will be asked to review the updated ACTION FALLS programme . The 'Think Aloud' method will be used to explore the views of clinician in using the programme. The programme will be completed in addition to the standard clinical assessment. Completion of this programme will not interfere with the standard care received by the service users and clinical care will remain the responsibility of the usual care team and existing processes.
The following data will be collected and analysed:
Component Two:
Up to 5 adults with an ID and 5 carers supporting adults with an ID in Nottinghamshire will be asked to use section one of the programme. This will be done without any clinician involvement. The programme will be reviewed as part of the workshop.
The following data will be collected and analysed:
Email addresses of participants who would like to be provided with a lay summary at the end of the study will be collected. This will be collected on the consent form optionally.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Adults with an intellectual disability | Review of ACTION FALLS programme |
| |
| Carers of adults with an intellectual disability | Review of ACTION FALLS programme |
| |
| Clinicians working with adults with an intellectual disability | Review of ACTION FALLS programme |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| ACTION FALLS | Behavioral | Falls prevention advice including booklet and videos |
|
| Measure | Description | Time Frame |
|---|---|---|
| Views on the falls risk and actions included | Participant views on the falls risks in the programme and if they are clear and accurate | Through study completion, on average one month |
| Time taken and level of completion of the programme | Time taken and view on the length of the programme and details of the information included | Through study completion, on average one month |
| Barriers and facilitators to completing the programme | Barriers and facilitators to completing the programme | Through study completion, on average one month |
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Inclusion Criteria:
Component One:
-Clinicians working in identified clinical team for adults with ID
Component Two:
Adults with an ID, 18 years and over, living in Nottinghamshire Family or paid carer of an adult with an ID living in Nottinghamshire
Exclusion Criteria:
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Clinicians working in an identified ID service in one locality in the UK and adults with ID and their carers identified from one geographical location in the UK.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Nottingham University Hospitals NHS Trust | Nottingham | United Kingdom | ||||
| Nottinghamshire Healthcare NHS Foundation Trust |
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| Label | URL |
|---|---|
| Study website | View source |
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No individual sharing of participant data.
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| ID | Term |
|---|---|
| D008607 | Intellectual Disability |
| ID | Term |
|---|---|
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D009422 | Nervous System Diseases |
| D012816 | Signs and Symptoms |
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| Nottingham |
| United Kingdom |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |