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The investigators aim to evaluate English and Spanish versions of the "Attitudes toward genomics and precision medicine" instrument (AGPM). This study will help validating a Spanish version of the AGPM among people identifying as Hispanic, Latino, or Latina. Having a valid instrument is important for developing tailored interventions to decrease disparities in genomic healthcare for this population.
The investigators will recruit 1,000 individuals (500 English-speaking and 500 Spanish-speaking) to complete the AGPM and previously validated instruments assessing health literacy and numeracy. Results will establish the psychometric properties of the Spanish version of the AGPM.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| AGPM for English Speakers | Other | Participants identifying as Hispanic, Latino, or Latina whose primary language is English |
|
| AGPM for Spanish Speakers | Other | Participants identifying as Hispanic, Latino, or Latina whose primary language is Spanish |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Attitudes Toward Genomics and Precision Medicine (English) | Other | completing the English version of the AGPM and validated health literacy and numeracy instruments |
|
| Measure | Description | Time Frame |
|---|---|---|
| Psychometric properties | Establish the psychometric properties of the translated AGPM | up to two weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Health literacy/numeracy | Establish correlations between health literacy/numeracy and AGPM scores | up to two weeks |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Andrew A Dwyer, PhD | Boston College | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Boston College | Chestnut Hill | Massachusetts | 02467 | United States |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 34267947 | Background | DuBois JM, Mozersky J, Antes A, English T, Parsons MV, Baldwin K. Attitudes toward genomics and precision medicine. J Clin Transl Sci. 2021 Apr 8;5(1):e120. doi: 10.1017/cts.2021.774. eCollection 2021. |
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De-identified data will be shared with the developers of the AGPM
Following publication, available indefinitely through the developers of the AGPM
Must contact the AGPM developers
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| ID | Term |
|---|---|
| D054198 | Precursor Cell Lymphoblastic Leukemia-Lymphoma |
| D001519 | Behavior |
| ID | Term |
|---|---|
| D007945 | Leukemia, Lymphoid |
| D007938 | Leukemia |
| D009370 | Neoplasms by Histologic Type |
| D009369 | Neoplasms |
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| ID | Term |
|---|---|
| D057285 | Precision Medicine |
| ID | Term |
|---|---|
| D013812 | Therapeutics |
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500 English-speaking individuals identifying as Hispanic, Latino, or Latina 500 Spanish-speaking individuals identifying as Hispanic, Latino, or Latina
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| Attitudes Toward Genomics and Precision Medicine (Spanish) | Other | completing the Spanish version of the AGPM and validated health literacy and numeracy instruments |
|
| D006402 |
| Hematologic Diseases |
| D006425 | Hemic and Lymphatic Diseases |
| D008232 | Lymphoproliferative Disorders |
| D008206 | Lymphatic Diseases |
| D007160 | Immunoproliferative Disorders |
| D007154 | Immune System Diseases |