Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| Unity Health Toronto | OTHER |
| Canadian Institutes of Health Research (CIHR) | OTHER_GOV |
| The Hospital for Sick Children | OTHER |
Not provided
Not provided
Not provided
The goal of this randomized controlled trial is to test if a patient navigator program improves healthcare experiences and outcomes for migrant families caring for a child or youth with special healthcare needs (i.e. chronic health condition).
The main questions are, for migrant families with a child or youth with special healthcare needs:
Does a patient navigator reduces barriers to care? Does a patient navigator improve care coordination, caregiver empowerment, caregiver stress and quality of life? What are the healthcare experiences for families with and without the patient navigator intervention?
Participants will:
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Usual Care | No Intervention | Participants will receive care usually provided within their clinics and a standard package with healthcare resources. In keeping with the pragmatic design, there will be variation in the support provided for navigation and care coordination, referral patterns to health and social services, as well as community resources. However, we will document these differences to provide context about potential differences in effects which may occur between sites. | |
| Patient Navigator | Experimental | Participants will be paired with a patient navigator. The patient navigator will contact participants: 1) Within 7 days of randomization; 2) At least once every 3 months up to 12 months; 3) As needed to follow-up on tasks identified in previous visits; and 4) As initiated by the participant. Contacts will occur during in-person clinic visits (prioritized for first encounter, if possible), or over video, telephone, SMS, and/or emails. The navigator will tailor the topics addressed during these interactions according to the needs of the participant and compile a care plan with input from the patient, family, and clinicians. In addition, to assess intervention fidelity, patient navigators will document all participant contacts on standardized forms, including topics addressed, services and coordination provided, written care plan provided, and concurrent resources/interventions accessed (e.g., social worker, funding/housing applications, support from community organizations). |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Patient Navigator | Behavioral | The patient navigator will meet the following requirements: a bachelor's degree in health or social sciences, or equivalent experiences; strong knowledge of the local health and social services system; trauma-informed care and cultural safety; strong interpersonal skills, ability to problem-solve, and autonomy; have prior experiences with migrant communities (including lived experiences) and working in healthcare setting. The navigator will be trained on topics related to their role, through case discussions, and role playing, as done in other navigator trials. Topics will include Indigenous cultural safety as applied to migrant health, systems navigation, care coordination, family-centred care, social determinants of health (health insurance, income supplements, etc.) and inequities, advanced communication and helping skills (e.g., motivational interviewing), ethics, privacy, and confidentiality, and others as determined through our co-design process. |
| Measure | Description | Time Frame |
|---|---|---|
| Barriers to Care (BCQ) | The BCQ has been validated for children and youth with special healthcare needs. It contains 39 items grouped in 5 sub-scales, which include: 1) Pragmatics: issues related to logistics and costs that may prevent or delay appropriate utilization; 2) Skills: strategies to navigate or function competently in health system care; 3) Expectations: caregiver expectations of receiving poor quality care, including a lack of communication between doctors, health care system; 4) Marginalization: the "internationalization and personalization of negative experiences within the health care system"; 5) Knowledge and beliefs: personal ideas about nature and treatment of illness (including culture), which may differ from the healthcare provider. Caregivers rate the items on a 5-point Likert scale, converted to a score ranging from 0 to 100 (higher scores = fewer barriers). | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Measure | Description | Time Frame |
|---|---|---|
| Effective care coordination | Based on 6 questions from the National Survey on children with special health care needs, as care coordination that is adequate (receiving help and satisfied), inadequate (not receiving and less than very satisfied), or no need for care coordination. The primary goals of this survey is to assess the impact of special health care needs and to evaluate change over time. |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Melissa Tachdjian | Contact | 438-543-2662 | melissa.tachdjian@rimuhc.ca | |
| Patricia Li, MD MSc FRCPC | Contact | patricia.li@mcgill.ca |
| Name | Affiliation | Role |
|---|---|---|
| Patricia Li | Research Institute of the McGill University Health Centre | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Unity Health Toronto, Compass Clinic | Not yet recruiting | Toronto | Ontario | M5B 1W8 | Canada |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 9714637 | Background | McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, Perrin JM, Shonkoff JP, Strickland B. A new definition of children with special health care needs. Pediatrics. 1998 Jul;102(1 Pt 1):137-40. doi: 10.1542/peds.102.1.137. No abstract available. | |
| 25692939 | Background | Arim RG, Kohen DE, Brehaut JC, Guevremont A, Garner RE, Miller AR, McGrail K, Brownell M, Lach LM, Rosenbaum PL. Developing a non-categorical measure of child health using administrative data. Health Rep. 2015 Feb;26(2):9-16. |
| Label | URL |
|---|---|
| United States Census Bureau. 2020 National Survey of Children's Health. Accessed December 31, 2021 | View source |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| ID | Term |
|---|---|
| D062526 | Patient Navigation |
| ID | Term |
|---|---|
| D018802 | Patient-Centered Care |
| D011320 | Primary Health Care |
| D003191 | Comprehensive Health Care |
| D010346 | Patient Care Management |
Not provided
Not provided
Multi-centre, pragmatic, assessor-blinded, parallel randomized controlled trial with an embedded qualitative study. In the control arm, participants will receive a standard information package and care usually provided within their clinics. In the intervention arm, participants will receive support from a trained patient navigator. The patient navigator will contact participants: 1) Within 7 days of randomization; 2) At least once every 3 months up to 12 months; 3) As needed to follow-up on tasks identified in previous visits; and 4) As initiated by the participant. The navigator will tailor the topics addressed during these interactions according to the needs of the participant and compile a care plan with input from the patient, family, and clinicians.
Not provided
Not provided
Not provided
|
| Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Parental empowerment scale | A validated scale in families with children or youth with special healthcare needs. We will use the 12-item "Service System" subscale, which measures empowerment using a 5-point Likert scale converted to a score ranging from 1- 70 (higher scores = increased services) as it pertains to the caregiver actively working to get the services required for their child. | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Healthcare utilization | ER visits, hospital admissions, and no-show visits, through chart review and patient reports. | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| PROMIS - Pediatric Global Health 7 | Parent-reported assessment of their child's perceived health, quality of life and physical/mental health using a 5-point likert scale. Converted to a score ranging from 1 to 20 (higher scores = better perceived health). | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Short-form survey 12 | For caregivers; This is a self-reported outcome measure that measures quality of life. This one question is scored from 1 poor health - 4 excellent health. | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Patient Health Questionnaire (PHQ-2) | For caregivers; The PHQ-2 inquires about the frequency of depressed mood and anhedonia over the past two weeks. This questionnaire is used to screen for depression in a "first-step" approach. The PHQ-2 score ranges from 0-6 with a score higher than 3 indicating a likelihood of depression. | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Distress Thermometer | The distress thermometer asks participants their level of distress in the past month on a scale of 0-10, 10 indicating extreme distress. | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Perceived stress scale | 10-item scale designed to help measure individual stress levels in various situations. PSS can range from 0 to 40 with higher scores indicating higher perceived stress. | Assessment will happen at baseline, 6 months after the start of the intervention and at the end of the intervention, i.e., 12 months. |
| Patient Satisfaction with Interpersonal Relationships with Navigators (PSN-I) | A valid and reliable measure of satisfaction with patient navigators that contains 9-item answered with a 5-point Likert scale. Score ranging from 1- 45, higher score reflects higher satisfaction with patient navigator. | Assessment will happen at 6 months and at the end of the intervention, i.e., 12 months, only for the intervention group. |
| CIUSSS West-Central Montreal | Recruiting | Montreal | Quebec | H3N 1Y9 | Canada |
|
| Montreal Children's Hospital | Recruiting | Montreal | Quebec | H4A 3J1 | Canada |
|
| Background | Antonelli R, McAllister J, Popp J. Making Care Coordination a Critical Component of the Pediatric Health System: A Multidisciplinary Framework. 2009. |
| 29932000 | Background | Cordeiro A, Davis RK, Antonelli R, Rosenberg H, Kim J, Berhane Z, Turchi R. Care Coordination for Children and Youth With Special Health Care Needs: National Survey Results. Clin Pediatr (Phila). 2018 Oct;57(12):1398-1408. doi: 10.1177/0009922818783501. Epub 2018 Jun 22. |
| 27858263 | Background | Fox F, Aabe N, Turner K, Redwood S, Rai D. "It was like walking without knowing where I was going": A Qualitative Study of Autism in a UK Somali Migrant Community. J Autism Dev Disord. 2017 Feb;47(2):305-315. doi: 10.1007/s10803-016-2952-9. |
| 25376126 | Background | Khanlou N, Haque N, Sheehan S, Jones G. "It is an Issue of not Knowing Where to Go": Service Providers' Perspectives on Challenges in Accessing Social Support and Services by Immigrant Mothers of Children with Disabilities. J Immigr Minor Health. 2015 Dec;17(6):1840-7. doi: 10.1007/s10903-014-0122-8. |
| 31637861 | Background | Alsharaydeh EA, Alqudah M, Lee RLT, Chan SW. Challenges, Coping, and Resilience Among Immigrant Parents Caring for a Child With a Disability: An Integrative Review. J Nurs Scholarsh. 2019 Nov;51(6):670-679. doi: 10.1111/jnu.12522. Epub 2019 Oct 21. |
| 19948607 | Background | Yu SM, Singh GK. Household language use and health care access, unmet need, and family impact among CSHCN. Pediatrics. 2009 Dec;124 Suppl 4:S414-9. doi: 10.1542/peds.2009-1255M. |
| 29374977 | Background | Son E, Moring NS, Igdalsky L, Parish SL. Navigating the health-care system in community: Perspectives from Asian immigrant parents of children with special health-care needs. J Child Health Care. 2018 Jun;22(2):251-268. doi: 10.1177/1367493517753084. Epub 2018 Jan 28. |
| 26093784 | Background | Kalich A, Heinemann L, Ghahari S. A Scoping Review of Immigrant Experience of Health Care Access Barriers in Canada. J Immigr Minor Health. 2016 Jun;18(3):697-709. doi: 10.1007/s10903-015-0237-6. |
| 32397618 | Background | Salami B, Mason A, Salma J, Yohani S, Amin M, Okeke-Ihejirika P, Ladha T. Access to Healthcare for Immigrant Children in Canada. Int J Environ Res Public Health. 2020 May 10;17(9):3320. doi: 10.3390/ijerph17093320. |
| 26364053 | Background | Ahmed S, Shommu NS, Rumana N, Barron GR, Wicklum S, Turin TC. Barriers to Access of Primary Healthcare by Immigrant Populations in Canada: A Literature Review. J Immigr Minor Health. 2016 Dec;18(6):1522-1540. doi: 10.1007/s10903-015-0276-z. |
| Background | McKeary M, Newbold B. Barriers to care: the challenges for Canadian refugees and their health care providers. Journal of Refugee Studies. 2010;23(4):523-545. |
| 23124632 | Background | Campbell RM, Klei AG, Hodges BD, Fisman D, Kitto S. A comparison of health access between permanent residents, undocumented immigrants and refugee claimants in Toronto, Canada. J Immigr Minor Health. 2014 Feb;16(1):165-76. doi: 10.1007/s10903-012-9740-1. |
| 28068998 | Background | Woodgate RL, Busolo DS, Crockett M, Dean RA, Amaladas MR, Plourde PJ. A qualitative study on African immigrant and refugee families' experiences of accessing primary health care services in Manitoba, Canada: it's not easy! Int J Equity Health. 2017 Jan 9;16(1):5. doi: 10.1186/s12939-016-0510-x. |
| 3068205 | Background | McLeroy KR, Bibeau D, Steckler A, Glanz K. An ecological perspective on health promotion programs. Health Educ Q. 1988 Winter;15(4):351-77. doi: 10.1177/109019818801500401. |
| 32687519 | Background | Tirado V, Chu J, Hanson C, Ekstrom AM, Kagesten A. Barriers and facilitators for the sexual and reproductive health and rights of young people in refugee contexts globally: A scoping review. PLoS One. 2020 Jul 20;15(7):e0236316. doi: 10.1371/journal.pone.0236316. eCollection 2020. |
| 32087730 | Background | Arfa S, Solvang PK, Berg B, Jahnsen R. Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway. BMC Health Serv Res. 2020 Feb 22;20(1):134. doi: 10.1186/s12913-020-5004-2. |
| 34518497 | Background | Yaseen W, Steckle V, Sgro M, Barozzino T, Suleman S. Exploring Stakeholder Service Navigation Needs for Children with Developmental and Mental Health Diagnoses. J Dev Behav Pediatr. 2021 Sep 1;42(7):553-560. doi: 10.1097/DBP.0000000000000924. |
| 31208417 | Background | Dimitropoulos G, Morgan-Maver E, Allemang B, Schraeder K, Scott SD, Pinzon J, Andrew G, Guilcher G, Hamiwka L, Lang E, McBrien K, Nettel-Aguirre A, Pacaud D, Zwaigenbaum L, Mackie A, Samuel S. Health care stakeholder perspectives regarding the role of a patient navigator during transition to adult care. BMC Health Serv Res. 2019 Jun 17;19(1):390. doi: 10.1186/s12913-019-4227-6. |
| Background | Dundaru-Bandi D, Daianska A, Ferkli M, Morantz G, Li P. Addressing and Evaluating the Healthcare Needs of Refugee and Immigrant Families During the COVID-19 Pandemic. presented at: Pediatric Academic Society Meeting; 2021; Virtual (due to COVID). |
| 29462179 | Background | McBrien KA, Ivers N, Barnieh L, Bailey JJ, Lorenzetti DL, Nicholas D, Tonelli M, Hemmelgarn B, Lewanczuk R, Edwards A, Braun T, Manns B. Patient navigators for people with chronic disease: A systematic review. PLoS One. 2018 Feb 20;13(2):e0191980. doi: 10.1371/journal.pone.0191980. eCollection 2018. |
| 20044339 | Background | Pedersen A, Hack TF. Pilots of oncology health care: a concept analysis of the patient navigator role. Oncol Nurs Forum. 2010 Jan;37(1):55-60. doi: 10.1188/10.ONF.55-60. |
| 18780320 | Background | Wells KJ, Battaglia TA, Dudley DJ, Garcia R, Greene A, Calhoun E, Mandelblatt JS, Paskett ED, Raich PC; Patient Navigation Research Program. Patient navigation: state of the art or is it science? Cancer. 2008 Oct 15;113(8):1999-2010. doi: 10.1002/cncr.23815. |
| 26768130 | Background | Shommu NS, Ahmed S, Rumana N, Barron GR, McBrien KA, Turin TC. What is the scope of improving immigrant and ethnic minority healthcare using community navigators: A systematic scoping review. Int J Equity Health. 2016 Jan 15;15:6. doi: 10.1186/s12939-016-0298-8. |
| 9651423 | Background | Newacheck PW, Strickland B, Shonkoff JP, Perrin JM, McPherson M, McManus M, Lauver C, Fox H, Arango P. An epidemiologic profile of children with special health care needs. Pediatrics. 1998 Jul;102(1 Pt 1):117-23. doi: 10.1542/peds.102.1.117. |
| 22455458 | Background | Lindsay S, King G, Klassen AF, Esses V, Stachel M. Working with immigrant families raising a child with a disability: challenges and recommendations for healthcare and community service providers. Disabil Rehabil. 2012;34(23):2007-17. doi: 10.3109/09638288.2012.667192. Epub 2012 Mar 29. |
| 21646638 | Background | Banerjee AT, Watt L, Gulati S, Sung L, Dix D, Klassen R, Klassen AF. Cultural beliefs and coping strategies related to childhood cancer: the perceptions of South Asian immigrant parents in Canada. J Pediatr Oncol Nurs. 2011 May-Jun;28(3):169-78. doi: 10.1177/1043454211408106. Epub 2011 Jun 6. |
| 33539727 | Background | Tuyisenge G, Goldenberg SM. COVID-19, structural racism, and migrant health in Canada. Lancet. 2021 Feb 20;397(10275):650-652. doi: 10.1016/S0140-6736(21)00215-4. Epub 2021 Feb 1. No abstract available. |
| 17766019 | Background | Bradby H, Varyani M, Oglethorpe R, Raine W, White I, Helen M. British Asian families and the use of child and adolescent mental health services: a qualitative study of a hard to reach group. Soc Sci Med. 2007 Dec;65(12):2413-24. doi: 10.1016/j.socscimed.2007.07.025. Epub 2007 Sep 4. |
| Background | Narayan N. Interplay between cultural beliefs and attitudes in raising a child with Intellectual Disability-An Asian Indian Study. Alliant International University; 2014. |
| 20535085 | Background | Jegatheesan B. Muslim children with autism learn to pray. J Dev Behav Pediatr. 2010 Jun;31(5):458-9. doi: 10.1097/DBP.0b013e3181d59470. No abstract available. |
| 25323397 | Background | King G, Desmarais C, Lindsay S, Pierart G, Tetreault S. The roles of effective communication and client engagement in delivering culturally sensitive care to immigrant parents of children with disabilities. Disabil Rehabil. 2015;37(15):1372-81. doi: 10.3109/09638288.2014.972580. Epub 2014 Oct 17. |
| Background | Browne AJ, Varcoe C, Ward C. San'yas Indigenous Cultural Safety Training as an educational intervention: Promoting anti-racism and equity in health systems, policies, and practices. The International Indigenous Policy Journal. 2021;12(3):1-26. |
| Background | Osei-Twum J, Puffer E, Banerjee AT. Indigenous Cultural Safety: Exploring The Applicability Of The Concepts To Immigrant Health Care. In Bruce Newbold & Kathi Wilson (Eds.), A Research Agenda for Migration and Health. 1st ed. Edward Elgar; 2019. |
| 31727076 | Background | Curtis E, Jones R, Tipene-Leach D, Walker C, Loring B, Paine SJ, Reid P. Why cultural safety rather than cultural competency is required to achieve health equity: a literature review and recommended definition. Int J Equity Health. 2019 Nov 14;18(1):174. doi: 10.1186/s12939-019-1082-3. |
| Background | Brown A, McIsaac J-L, Reddington S, et al. Newcomer families' experiences with programs and services to support early childhood development in Canada: A scoping review. Journal of Childhood, Education & Society. 2020;1(2) |
| Background | John A, Bower K, McCullough S. Indian immigrant parents of children with developmental disabilities: stressors and support systems. Early Child Development and Care. 2016;186(10) |
| 29550777 | Background | Peart A, Lewis V, Brown T, Russell G. Patient navigators facilitating access to primary care: a scoping review. BMJ Open. 2018 Mar 17;8(3):e019252. doi: 10.1136/bmjopen-2017-019252. |
| 29769815 | Background | Luke A, Doucet S, Azar R. Paediatric patient navigation models of care in Canada: An environmental scan. Paediatr Child Health. 2018 May;23(3):e46-e55. doi: 10.1093/pch/pxx176. Epub 2018 Jan 2. |
| 34962514 | Background | Frakking TT, Teoh HJ, Shelton D, Moloney S, Ward D, Annetts K, David M, Levitt D, Chang AB, Carty C, Barber M, Carter HE, Mickan S, Weir KA, Waugh J. Effect of Care Coordination Using an Allied Health Liaison Officer for Chronic Noncomplex Medical Conditions in Children: A Multicenter Randomized Clinical Trial. JAMA Pediatr. 2022 Mar 1;176(3):244-252. doi: 10.1001/jamapediatrics.2021.5465. |
| Background | Merariu J, Sabsabi B, Ferkli M, Li P. Evaluating a Newcomer Navigator Program for the Montreal Children's Hospital Multicultural Clinic. presented at: North American Refugee Health Conference; 2021; Virtual (due to COVID). |
| Background | Suleman S, Milone F, Rollins M, Vojvoda D, Barozzino T. Implementation of a pediatric patient navigator for children with developmetnal or mental health concerns. Paediatrics & Child Health. 2018;23(1):e56. |
| 34385202 | Background | Arya N, Redditt VJ, Talavlikar R, Holland T, Brindamour M, Wright V, Saad A, Beukeboom C, Coakley A, Rashid M, Pottie K. Caring for refugees and newcomers in the post-COVID-19 era: Evidence review and guidance for FPs and health providers. Can Fam Physician. 2021 Aug;67(8):575-581. doi: 10.46747/cfp.6708575. |
| Background | Rizwan A, Suleman S. An Evidence-Based Model of Care for Newcomer Children with Special Health Care Needs. Paediatrics & Child Health. 2020;25(2):e47-48. |
| 27265562 | Background | Greenhalgh T, Jackson C, Shaw S, Janamian T. Achieving Research Impact Through Co-creation in Community-Based Health Services: Literature Review and Case Study. Milbank Q. 2016 Jun;94(2):392-429. doi: 10.1111/1468-0009.12197. |
| 33148733 | Background | Moll S, Wyndham-West M, Mulvale G, Park S, Buettgen A, Phoenix M, Fleisig R, Bruce E. Are you really doing 'codesign'? Critical reflections when working with vulnerable populations. BMJ Open. 2020 Nov 3;10(11):e038339. doi: 10.1136/bmjopen-2020-038339. |
| 19948609 | Background | Turchi RM, Berhane Z, Bethell C, Pomponio A, Antonelli R, Minkovitz CS. Care coordination for CSHCN: associations with family-provider relations and family/child outcomes. Pediatrics. 2009 Dec;124 Suppl 4:S428-34. doi: 10.1542/peds.2009-1255O. |
| 11888437 | Background | Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr. 2002 Jan-Feb;2(1):38-48. doi: 10.1367/1539-4409(2002)0022.0.co;2. |
| 15264959 | Background | Seid M, Sobo EJ, Gelhard LR, Varni JW. Parents' reports of barriers to care for children with special health care needs: development and validation of the barriers to care questionnaire. Ambul Pediatr. 2004 Jul-Aug;4(4):323-31. doi: 10.1367/A03-198R.1. |
| 17998077 | Background | Borm GF, Fransen J, Lemmens WA. A simple sample size formula for analysis of covariance in randomized clinical trials. J Clin Epidemiol. 2007 Dec;60(12):1234-8. doi: 10.1016/j.jclinepi.2007.02.006. Epub 2007 Jun 6. |
| 31826899 | Background | Samuel S, Dimitropoulos G, Schraeder K, Klarenbach S, Nettel-Aguirre A, Guilcher G, Pacaud D, Pinzon J, Lang E, Andrew G, Zwaigenbaum L, Scott S, McBrien K, Hamiwka L, Mackie A. Pragmatic trial evaluating the effectiveness of a patient navigator to decrease emergency room utilisation in transition age youth with chronic conditions: the Transition Navigator Trial protocol. BMJ Open. 2019 Dec 10;9(12):e034309. doi: 10.1136/bmjopen-2019-034309. |
| 32613373 | Background | Bender JL, Flora PK, Milosevic E, Soheilipour S, Maharaj N, Dirlea M, Parvin L, Matthew A, Kazanjian A. Training prostate cancer survivors and caregivers to be peer navigators: a blended online/in-person competency-based training program. Support Care Cancer. 2021 Mar;29(3):1235-1244. doi: 10.1007/s00520-020-05586-8. Epub 2020 Jul 2. |
| 15804318 | Background | Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A, Erikson P; ISPOR Task Force for Translation and Cultural Adaptation. Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health. 2005 Mar-Apr;8(2):94-104. doi: 10.1111/j.1524-4733.2005.04054.x. |
| 19329101 | Background | Seid M, Opipari-Arrigan L, Gelhard LR, Varni JW, Driscoll K. Barriers to care questionnaire: reliability, validity, and responsiveness to change among parents of children with asthma. Acad Pediatr. 2009 Mar-Apr;9(2):106-13. doi: 10.1016/j.acap.2008.12.003. Epub 2009 Feb 11. |
| Background | Koren PE, DeChillo N, Friesen BJ. Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology. 1992;37(4):305-321. |
| 30426545 | Background | Segers EW, van den Hoogen A, van Eerden IC, Hafsteinsdottir T, Ketelaar M. Perspectives of parents and nurses on the content validity of the Family Empowerment Scale for parents of children with a chronic condition: A mixed-methods study. Child Care Health Dev. 2019 Jan;45(1):111-120. doi: 10.1111/cch.12629. |
| 6668417 | Background | Cohen S, Kamarck T, Mermelstein R. A global measure of perceived stress. J Health Soc Behav. 1983 Dec;24(4):385-96. No abstract available. |
| 28810432 | Background | Baik SH, Fox RS, Mills SD, Roesch SC, Sadler GR, Klonoff EA, Malcarne VL. Reliability and validity of the Perceived Stress Scale-10 in Hispanic Americans with English or Spanish language preference. J Health Psychol. 2019 Apr;24(5):628-639. doi: 10.1177/1359105316684938. Epub 2017 Jan 5. |
| 32917170 | Background | Bastianon CD, Klein EM, Tibubos AN, Brahler E, Beutel ME, Petrowski K. Perceived Stress Scale (PSS-10) psychometric properties in migrants and native Germans. BMC Psychiatry. 2020 Sep 11;20(1):450. doi: 10.1186/s12888-020-02851-2. |
| 32197589 | Background | Huang F, Wang H, Wang Z, Zhang J, Du W, Su C, Jia X, Ouyang Y, Wang Y, Li L, Jiang H, Zhang B. Psychometric properties of the perceived stress scale in a community sample of Chinese. BMC Psychiatry. 2020 Mar 20;20(1):130. doi: 10.1186/s12888-020-02520-4. |
| 27546692 | Background | Kim HJ. Reliability and Validity of the 4-Item Version of the Korean Perceived Stress Scale. Res Nurs Health. 2016 Dec;39(6):472-479. doi: 10.1002/nur.21745. Epub 2016 Aug 22. |
| 32702031 | Background | Martynowska K, Korulczyk T, Mamcarz PJ. Perceived stress and well-being of Polish migrants in the UK after Brexit vote. PLoS One. 2020 Jul 23;15(7):e0236168. doi: 10.1371/journal.pone.0236168. eCollection 2020. |
| 24118069 | Background | Nordin M, Nordin S. Psychometric evaluation and normative data of the Swedish version of the 10-item perceived stress scale. Scand J Psychol. 2013 Dec;54(6):502-7. doi: 10.1111/sjop.12071. Epub 2013 Oct 5. |
| 16673626 | Background | Remor E. Psychometric properties of a European Spanish version of the Perceived Stress Scale (PSS). Span J Psychol. 2006 May;9(1):86-93. doi: 10.1017/s1138741600006004. |
| 18179669 | Background | Ravens-Sieberer U, Gosch A, Rajmil L, Erhart M, Bruil J, Power M, Duer W, Auquier P, Cloetta B, Czemy L, Mazur J, Czimbalmos A, Tountas Y, Hagquist C, Kilroe J; KIDSCREEN Group. The KIDSCREEN-52 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. Value Health. 2008 Jul-Aug;11(4):645-58. doi: 10.1111/j.1524-4733.2007.00291.x. Epub 2007 Dec 17. |
| 31076896 | Background | Jean-Pierre P, Shao C, Cheng Y, Wells KJ, Paskett E, Fiscella K. Patient Satisfaction with Navigator Interpersonal Relationship (PSN-I): item-level psychometrics using IRT analysis. Support Care Cancer. 2020 Feb;28(2):541-550. doi: 10.1007/s00520-019-04833-x. Epub 2019 May 10. |
| Background | Charmaz K. Constructing grounded theory. 2nd edition ed. Introducing qualitative methods. Sage; 2014:xxi, 388 pages. |
| 21425390 | Background | Klassen AF, Gulati S, Watt L, Banerjee AT, Sung L, Klaassen RJ, Dix D, Poureslami IM, Shaw N. Immigrant to Canada, newcomer to childhood cancer: a qualitative study of challenges faced by immigrant parents. Psychooncology. 2012 May;21(5):558-62. doi: 10.1002/pon.1963. Epub 2011 Mar 21. |
| 31171041 | Background | Davis K, Minckas N, Bond V, Clark CJ, Colbourn T, Drabble SJ, Hesketh T, Hill Z, Morrison J, Mweemba O, Osrin D, Prost A, Seeley J, Shahmanesh M, Spindler EJ, Stern E, Turner KM, Mannell J. Beyond interviews and focus groups: a framework for integrating innovative qualitative methods into randomised controlled trials of complex public health interventions. Trials. 2019 Jun 6;20(1):329. doi: 10.1186/s13063-019-3439-8. |
| Background | Cresswell JW, Poth CN. Qualitative Inquiry & Research Design: Choosing among five approaches. 6th ed. 2018. |
| Background | Charmaz K. The Power of Constructivist Grounded Theory for Critical Inquiry. Qualitative Inquiry. 2017;23(1):34-45. doi:10.1177/1077800416657105 |
| 15551661 | Background | Guruge S, Khanlou N. Intersectionalities of influence: researching the health of immigrant and refugee women. Can J Nurs Res. 2004 Sep;36(3):32-47. |
| Background | Spradley JP. The ethnographic interview. Holt, Rinehart and Winston; 1979:vii, 247 p. |
| Background | Williamson DL, Choi J, Charchuk M, et al. Interpreter-facilitated cross-language interviews: a research note. Qualitative research. 2011;11(4):381-94. |
| 18352969 | Background | Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008 Apr;62(1):107-15. doi: 10.1111/j.1365-2648.2007.04569.x. |
| 17872937 | Background | Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007 Dec;19(6):349-57. doi: 10.1093/intqhc/mzm042. Epub 2007 Sep 14. |
| Background | Impact of the South Asian Adolescent Diabetes Awareness Program (SAADAP) on diabetes knowledge, risk perception and health behaviour. |
| 34591689 | Background | Weidman DR, Desmarais P, Stevens K, Klinger CA, Colquhoun H, Bender JL, Gupta A. Peer Support Needs of Adolescents with Cancer in Pediatrics: A Canadian Mixed Methods Study. J Adolesc Young Adult Oncol. 2022 Aug;11(4):433-438. doi: 10.1089/jayao.2021.0122. Epub 2021 Sep 30. |
| 30777710 | Background | McKay S. Immigrant Children With Special Health Care Needs: A Review. Curr Probl Pediatr Adolesc Health Care. 2019 Feb;49(2):45-49. doi: 10.1016/j.cppeds.2019.01.004. Epub 2019 Feb 15. |
| 34127460 | Background | Merry L, Pelaez S. Knowledge translation and better health and health care for migrants in Canada: What is the responsibility of health funders and researchers? Can Fam Physician. 2021 Jun;67(6):403-405. doi: 10.46747/cfp.6706403. No abstract available. |
| Canadian Institutes of Health Research. (2021). Transitions in Care. Retrieved from Government of Canada: Canadian Institutes of Health Research. Accessed December 30, 2022 | View source |
| Children with an immigrant background: Bridging cultures | View source |
| Statistics Canada. Social Assistance Receipt Among Refugee Claimants in Canada | View source |
| Social Planning Toronto. Unequal City: The Hidden Divide Among Toronto's Children and Youth | View source |
| National Care Coordination Standards for Children and Youth with Special Health Care Needs. | View source |
| WHO guidelines on hand hygiene in health care. | View source |
| Geographic distribution of immigrants and recent immigrants and their proportion within the population of census metropolitan areas, Canada | View source |
| D006298 | Health Services Administration |