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| Name | Class |
|---|---|
| Royal Dutch Visio | OTHER |
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The goal of this observational study is to explore difficulties in information access, mobility, communication and fatigue in people with combined vision and hearing impairments. The main question it aims to answer is:
• What influence do varying severities of vision and hearing loss have on information access, mobility, communication and fatigue.
Participants will fill out questionnaires and the researchers will measure their vision and hearing functions.
People with dual sensory loss have impairments in both vision and hearing. When the impairments are severe, it will become more difficult to compensate for these impairments. This can result in difficulties, for example in the areas of access to information, communication, fatigue and/or mobility. Now, we do not know which problems arise from different combinations and levels of impairments in visual acuity, contrast sensitivity, visual field, hearing threshold, directional hearing and speech understanding. We also do not know how this influences the areas of access to information, communication, fatigue and mobility.
The objective of this study is to determine which problems arise from different levels of impairments in visual and auditory functions. We will especially focus on the areas of access to information, communication, fatigue and mobility.
Study design
Participants' visual (visual acuity, visual field, contrast sensitivity) and auditory functions (hearing threshold, directional hearing, speech understanding) will be measured. We will use the following materials:
Several questionnaires will be filled out to measure difficulties in the areas of access to information, communication, fatigue and mobility:
Study population:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| participants with dual sensory loss | participants with both vision and hearing loss | ||
| participants with vision loss | participants with vision loss only | ||
| participants with hearing loss | participants with hearing loss only | ||
| participants with normal vision and hearing | participants without vision or hearing loss |
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| Measure | Description | Time Frame |
|---|---|---|
| information access | Access to information will be measured with the Dutch ICF Activity Inventory (subscales 'Watching TV', 'Using a computer' and 'Using a telephone'). These subscales consist of 11, 13 and 5 items, respectively (29 items in total). All items are scored on a 5-point likert scale. | 1 day |
| mobility | Mobility will be measured with the Dutch ICF Activity Inventory (subscales 'Mobility outdoors (walking)' and 'Using public transportation'). These subscales consist of 16 and 15 items, respectively (31 items in total). All items are scored on a 5-point likert scale. Secondly, the Spatial Localization Questionnaire20 will be used, consisting of 35 items, describing common scenarios. The following question structure is provided under each of the scenarios: Can you complete this task solely with your current vision? If yes, how difficult is it? (rated on a 5-point likert scale) Can you complete this task solely with your current hearing? If yes, how difficult is it? (rated on a 5-point likert scale) Would you primarily rely on your vision or hearing for this task? Do you use the other sense for this task at all? | 1 day |
| communication | Communication will be measured with the Speech, Spatial and Qualities of Hearing Scale (speech subscale). This subscale consists of 14 items and is scored on an 11-point visual analog scale. | 1 day |
| fatigue | Fatigue will be measured with the Dutch ICF Activity Inventory (feeling fit subscale). This subscale consists of 9 items, scored on a 5-point likert scale. Secondly, the Fatigue Assessment Scale will be used, consisting of 10 items, scored on a 5-point likert scale. | 1 day |
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Inclusion Criteria:
Exclusion Criteria:
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People with dual sensory loss have impairments in both vision and hearing, which can range from total vision and hearing loss to having limited residual vision and hearing.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Esther Veenman, MSc | Contact | +31204440105 | e.veenman1@amsterdamumc.nl | |
| Ruth MA van Nispen, prof.dr. | Contact | +31204444795 | r.vannispen@amsterdamumc.nl |
| Name | Affiliation | Role |
|---|---|---|
| Ruth MA van Nispen, prof.dr. | Amsterdam UMC, location VUmc | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Amsterdam UMC, location VUmc | Amsterdam | North Holland | 1081 HV | Netherlands |
IPD cannot be shared if it includes identifiable information.
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| ID | Term |
|---|---|
| D003142 | Communication |
| D005221 | Fatigue |
| ID | Term |
|---|---|
| D001519 | Behavior |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |
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