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Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on:
Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on:
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| Measure | Description | Time Frame |
|---|---|---|
| Frequency of participants citing words attributable to the topic of awareness in the text with the aim to explore the experience of adolescents and young adults with prior cancer with respect to the issue of the right to be forgotten. | Frequency with which words attributable to the topic of awareness are expressed in the text | up to 1 year |
| Frequency of participants citing words attributable to the thematic area that delineate the architecture of the text about meaning and subjective perception of the right to be forgotten. | Frequency of participants citing words attributable to the thematic area that delineate the architecture of the text about meaning and subjective perception of the right to be forgotten. | up to 1 year |
| Frequency of participants citing words attributable to implications/implications perceived or experienced on one's present and future history with respect to the issue of the right to be forgotten. | Frequency of participants citing words attributable to implications/implications perceived or experienced on one's present and future history with respect to the issue of the right to be forgotten. | up to 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| Frequency of patients with information that can lead to the recognition of the right to be forgotten primarily in the AYA population | Frequency of patients with information that can lead to the recognition of the right to be forgotten primarily in the AYA population measured through indicators that identify this argumentative junction in the text | up to 1 year |
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Inclusion Criteria:
Exclusion Criteria: NA
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50-60 subjects afferent to pediatric and adult oncology centers, off therapy for at least 1 year and with at least 5 years since the diagnosis.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Maurizio Mascarin, MD | Contact | 0434 659 536 | mascarin@cro.it |
| Name | Affiliation | Role |
|---|---|---|
| Maurizio Mascarin, MD | Centro di Riferimento Oncologico di Aviano (CRO) - IRCCS | Principal Investigator |
| Francesca Bomben, Dr | Centro di Riferimento Oncologico di Aviano (CRO) - IRCCS | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Centro di Riferimento Oncologico (CRO) di Aviano - IRCCS | Recruiting | Aviano | Pordenone | 33081 | Italy |
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| IRCCS Ospedale Policlinico San Martino | Recruiting | Genova | Italy |
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| Fondazione IRCCS Istituto Nazionale Tumori | Recruiting | Milan | Italy |
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| Istituto Europeo di Oncologia IRCCS | Recruiting | Milan | Italy |
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| Azienda Ospedaliero-Universitaria di Modena | Recruiting | Modena | Italy |
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| Università degli studi di Milano - Bicocca | Recruiting | Monza | Italy |
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| Università di Palermo | Recruiting | Palermo | Italy |
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| IRCCS, Ospedale Bambino Gesù | Recruiting | Roma | Italy |
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| Ospedale Regina Margherita | Recruiting | Torino | Italy |
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