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The purpose of this study is to evaluate a web-based education tool geared at helping Adolescent and Young Adult (AYA) patients better understand fertility and genetic risks for cancer in future offspring.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Round 1 Interviews and/or Focus Group | Approximately12 people will be recruited complete interviews or focus groups in Round 1. The participants will be provided with the REFLECT tool. There will be interviews and discussions via telephone or ZOOM and feedback will be obtained to enhance the REFLECT tool. |
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| Round 2 Interviews and/or Focus Group | Approximately 13 people will be recruited to complete interviews or focus group in Round 2. The participants will be provided with the REFLECT tool that has been modified to include feedback from Round 1 interviews/focus groups. There will be interviews and discussions via telephone or ZOOM and feedback will be obtained on the enhanced tool. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| REFLECT web-based tool | Behavioral | Partnering with Nest Genomics, Investigators have developed a customizable web-based tool to support AYA patients through their cancer diagnosis journey for topics related to future family building and genetics. This interactive tool will include educational content to organize knowledge, make connections between concepts, and will include web links to more in-depth content and embedded videos. The interface will allow users to document questions that would be helpful in provider discussions and include decision support to assist with determining values and needs for proceeding with consultations related to genetic counseling and testing, and fertility. |
| Measure | Description | Time Frame |
|---|---|---|
| Ease of use of the REFLECT tool | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) | One Year |
| Confidence in use of the REFLECT tool | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) | One Year |
| Complexity of use of the REFLECT tool | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) | One Year |
| Desire to use the REFLECT tool | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) | One Year |
| Perception of inconsistencies of the REFLECT tool | System usability scale of 1-5 (1 strongly disagree and 5 strongly agree) | One Year |
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Inclusion Criteria:
Exclusion Criteria:
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Adults ages 18-39 who have received cancer care at Moffitt and have children or are considering having a chilid in the future.
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| Name | Affiliation | Role |
|---|---|---|
| Susan Vadaparampil | Moffitt Cancer Center | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Moffitt Cancer Center | Tampa | Florida | 33612 | United States |
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| Label | URL |
|---|---|
| Moffitt Cancer Center's Clinical Trials Website | View source |
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| ID | Term |
|---|---|
| D043762 | Reproductive Behavior |
| ID | Term |
|---|---|
| D001519 | Behavior |
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