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Gynaecological check-ups for women are recommended in France. However, some groups of the population are affected by a lack or absence of medical surveillance.
In France, there are one million people with an intellectual disability, including 50,000 with Down syndrome.
Although this disability causes numerous physical and psychological deficits, no gynaecological consequences have yet been demonstrated.
Regular gynaecological check-ups are therefore necessary, according to French recommendations.
However, several studies have shown that women with mental illness receive less or no gynaecological care.
The aim is to describe the gynaecological follow-up of women with Down syndrom in France.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| women with Down syndrome aged 18 to 30 | women aged 18 to 30 with Down syndrome, whether or not they were receiving medical care, who agreed to take part in the study. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Data collection | Other | Data collection |
|
| Measure | Description | Time Frame |
|---|---|---|
| Gynaecological follow-up | Presence or not of gynaecological follow-up | Day 0 |
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Inclusion Criteria:
Exclusion Criteria:
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women with Down syndrome, aged 18 to 30, whether or not they are being followed up in medical facilities in France.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Barbe Coralie, DR | Contact | 0326913865 | +33 | coralie.barbe@univ-reims.fr |
| CURRS CURRS | Contact | 0326918822 | +33 | curss@univ-reims.fr |
| Name | Affiliation | Role |
|---|---|---|
| Muller Gaëlle | Université de Reims Champagne-Ardenne | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Ufr Medecine Urca | Reims | 51100 | France |
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| ID | Term |
|---|---|
| D004314 | Down Syndrome |
| ID | Term |
|---|---|
| D008607 | Intellectual Disability |
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D009422 | Nervous System Diseases |
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| ID | Term |
|---|---|
| D003625 | Data Collection |
| ID | Term |
|---|---|
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
| D011787 | Quality of Health Care |
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| D000015 | Abnormalities, Multiple |
| D000013 | Congenital Abnormalities |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D025063 | Chromosome Disorders |
| D030342 | Genetic Diseases, Inborn |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |