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| Name | Class |
|---|---|
| Leiden University Medical Center | OTHER |
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In this pilot study, physicians and nurse practitioners working in different care settings will use MuSt-PC, for adult patients with any life-limiting iilness, for whom the Surprise question is answered negatively: if the HCP answers "no" to the question "Would I be surprised if this patiënt died in the next 12 months?''. In total, at least 20 eligible patients will be recruited and asked to perform all study assessments.
In this pilot study, physicians and nurse practitioners working in different care settings will use MuSt-PC, for adult patients with any life-limiting iilness, for whom the Surprise question is answered negatively: if the HCP answers "no" to the question "Would I be surprised if this patiënt died in the next 12 months?''. In total, at least 20 eligible patients will be recruited and asked to perform all study assessments.
After a baseline screening assessment, all eligible patients with at least 2 simultaneously occurring symptoms with a numeric rating score £4 on the 11 point scale on the Utrecht Symptom Diary, will be asked to fiil out the Utrecht Symptom Diary during two weeks.
In the first week twice daily (morning and evening), in the second week once daily (evening).
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| symptom assessment | Other | Patients will have assessed symptom burden using the Dutch validated ESAS (called USD), build in the MuSt-PC tool. Thereafter, they will record symptom burden in a diary during 2 weeks. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| USD questionnaire | Other | After a baseline screening symptom assessment, all eligible patients with at least 2 simultaneously occurring symptoms with a numeric rating score ≥4 on the 11 point scale on the Utrecht Symptom Diary, will be asked to fill out the Utrecht Symptom Diary during two weeks. In the first week twice daily (morning and evening), in the second week once daily (evening). |
| Measure | Description | Time Frame |
|---|---|---|
| Ability and willingness of patients to complete follow-up assessments | the percentage of patients who completed all questionnaires during follow-up | after 2 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Recruitment of patients; the number of patients that consented and those that declined participation, as well as number of eligible patients. | % of patients | after 2 weeks |
| Adherence to advice by patients provided based on the MuSt-PC CDSS |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| An KL Reyners, MD, PhD | University Medical Center Groningen | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University Medical Center Groningen | Groningen | Netherlands | ||||
| LUMC |
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% of patients
| after 2 weeks |
| Patient impressions of the MuSt-PC CDSS | 10 questions with a 4-point Likert scale | after 2 weeks |
| Time until symptom burden decreases after the use of the MuSt-PC CDSS based on the filled out Utrecht Symptom Diaries (days) | in days | after 2 weeks |
| Feedback about the follow-up assessments within this pilot | open questions | after 2 weeks |
| Leiden |
| Netherlands |