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| Name | Class |
|---|---|
| University of Exeter | OTHER |
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The goal of this qualitative study is to investigate what matters to older people living with frailty, and how this can be measured using questionnaires (Patient Reported Outcome Measures, or "PROMs").
The research questions are:
Our estimated sample will be 15 older adults, approximately 5 people living with mild frailty, 5 living with moderate frailty and 5 living with severe frailty. Participants will take part in one 90-minute interview.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Older adults with frailty | Participants will be interviewed about what matters to them. They will then give their opinions on questionnaires that aim to measure what matters to them. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Qualitative Interviews | Behavioral | Participants will take part in one 90-minute interview (or two 45-minute interviews if preferred). The interview will have two sections. The first section will include discussion of what matters to participants. The second section will introduce PROMs which may be pertinent to measuring what matters. The participants will be helped to reflect on their relevance and usefulness to them. |
| Measure | Description | Time Frame |
|---|---|---|
| Identify outcomes that matter to older people with frailty | Qualitative interviews will be conducted with older people living with frailty to identify what matters to people (e.g. managing pain, functional independence, suitability of medications, social support). This may vary at different severities of frailty. | 6 months |
| Investigate perceptions of questionnaires | Qualitative interviews will be conducted with older people living with frailty to investigate participants' perceptions of PROMs (questionnaires) that could measure outcomes that matter to them. | 6 months |
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Inclusion Criteria:
Over the age of 65
Indication of frailty in one of the following ways:
Having mental capacity to consent to participate as defined under the Mental Capacity Act (2005). This will be assessed in the telephone conversation prior to the interview by a researcher who has received Mental Capacity training
Available to be interviewed by face-to-face interview at the National Institute of Health Research (NIHR) Exeter Clinical Research Facility or as a home visit, or as an online meeting
Exclusion Criteria:
Not able to participate in face-to-face interview or use video call technology
Not assessed as frail
Not able to express thoughts and opinions in sufficient depth for analysis, even with facilitation by a relative or carer. This will be assessed in the telephone conversation with the researcher prior to the interview.
Lacking capacity to consent to participate as defined under the Mental Capacity Act (2005). An individual would be unable to participate if they cannot:
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Older people (aged 65 and over) living with frailty.
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| Name | Affiliation | Role |
|---|---|---|
| Suzy Hope | Royal Devon and Exeter NHS Foundation Trust | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Royal Devon Hospital | Exeter | Devon | EX2 5DW | United Kingdom |
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| ID | Term |
|---|---|
| D000073496 | Frailty |
| ID | Term |
|---|---|
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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