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| Name | Class |
|---|---|
| Changi General Hospital | OTHER |
| Singapore General Hospital | OTHER |
| Sengkang General Hospital | OTHER |
| National Heart Centre Singapore |
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The study aims to develop and evaluate a web-based interactive platform (called 'My Voice') that helps to educate patients with heart failure and their caregivers about heart failure, identify their goals for end-of-life care, and share these with their caregivers and doctors.
The research study consists of 3 phases:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| My Voice | Experimental | Intervention arm patients will complete the patient version of 'My Voice' at least once every 3 months for 1 year or until they pass away (whichever is earlier). Caregivers of patients in the intervention arm will complete the caregiver version of 'My Voice' at least once every 3 months for 1 year (or until the patient passes away, whichever is earlier). |
|
| Control | No Intervention | Control arm patients and caregivers will receive usual care. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| My Voice | Other | The web intervention educates patients about their illness and supports them to make their own Advance Care Planning decisions, update these decisions frequently as their clinical condition changes, and to make the ACP process easier and more accessible. The intervention aims to shift implementation of ACP from a provider-led one-time model to a patient-led dynamic model. |
| Measure | Description | Time Frame |
|---|---|---|
| Proportion of patients who have ACP discussions with their treating doctor at least once during the study period | will be assessed from medical records and survey | 1 year from data collection |
| Proportion of patients who have ACP discussions with their caregivers | will be assessed from the survey | 1 year from data collection |
| Proportion of patients who prefer life-extending treatments | will be assessed from the survey | 1 year from data collection |
| Measure | Description | Time Frame |
|---|---|---|
| Proportion of patients with psychological distress | will be assessed from the survey | 1 year from data collection |
| Peace and acceptance scores | will be assessed from the survey |
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Inclusion Criteria:
- The inclusion criteria for patients are
The inclusion criteria for caregivers are
Exclusion criteria for caregivers are:
a) domestic helper
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| Name | Affiliation | Role |
|---|---|---|
| Chetna Malhotra | Duke-NUS Graduate Medical School | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Duke-NUS | Singapore | Singapore | 169857 | Singapore |
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| ID | Term |
|---|---|
| D006333 | Heart Failure |
| ID | Term |
|---|---|
| D006331 | Heart Diseases |
| D002318 | Cardiovascular Diseases |
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| OTHER |
| Khoo Teck Puat Hospital | OTHER |
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| 1 year from data collection |
| Proportion of patients having decision maker | will be assessed from the survey | 1 year from data collection |