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| Name | Class |
|---|---|
| National Institute for Health Research, Applied Research Collaboration, Wessex | UNKNOWN |
| Fortuneswell Cancer Trust | UNKNOWN |
| Dorset County Hospital NHS Foundation Trust | OTHER_GOV |
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The aim of this survey study is to provide broad information as reported by cancer survivors and their intimate partners about both their sexual health and their experiences of care from the United Kingdom hospital cancer team, including their perspectives on factors that may hinder or help care. This information will be analysed and used to inform the questions asked in a separate, subsequent, qualitative study.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| People with Cancer | No intervention |
| |
| Partners of People with Cancer | No intervention |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| No intervention | Other | No intervention |
|
| Measure | Description | Time Frame |
|---|---|---|
| Number of participants who had a sexual health discussion(s) with the hospital cancer team at any point during cancer care | Sexual health discussion:19 examples of the sort of topics that may have been discussed in relation to sexual health | Up to 10 years prior to completing survey (discussion(s) about sexual health could have occurred at any point during cancer care) |
| Measure | Description | Time Frame |
|---|---|---|
| Number of participants with specific levels of impact on their sex lives by cancer and its treatments | As above | From each individual participants' cancer diagnosis/cancer treatment until the date that they completed the survey |
| Survey questionnaire to measure the nature and prevalence of care for sexual health that cancer survivors and their intimate partners self-report experiencing from the UK hospital cancer team. |
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Inclusion Criteria:
Exclusion Criteria:
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People with cancer or the partners of people with cancer
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| Name | Affiliation | Role |
|---|---|---|
| Sam Porter, PhD, RN | Bournemouth University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Bournemouth University | Bournemouth | Dorset | BH8 8AJ | United Kingdom |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 40967121 | Derived | Sheppard S, Culliford D, Glen T, Lee S, Sheppard ZA, Porter S. Care for sexual health in oncology survey: a regression analysis of variables associated with the likelihood of people with cancer having a sexual health discussion with the hospital cancer team. Eur J Oncol Nurs. 2025 Oct;78:102977. doi: 10.1016/j.ejon.2025.102977. Epub 2025 Sep 1. |
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Participant information sheet stated that information would not be made publicly available via a data sharing repository. This approach was taken due to the sensitive nature of the topic and was anticipated to provide reassurance and potentially improve recruitment.
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
| D012735 | Sexual Dysfunction, Physiological |
| D020018 | Sexual Dysfunctions, Psychological |
| D019529 | Sexuality |
| D003142 | Communication |
| ID | Term |
|---|---|
| D000091662 | Genital Diseases |
| D000091642 | Urogenital Diseases |
| D001523 | Mental Disorders |
| D012725 | Sexual Behavior |
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An online survey questionnaire (no validated questionnaire available and therefore research created the questionnaire based on a literature reviews on sexual health in oncology |
| Participants can report care received from prior to their cancer treatment through to their follow-up care (last 10 years only) |
| Survey questionnaire to measure the nature and prevalence of the perceived barriers to and facilitators for care for sexual health as received by cancer survivors and their intimate partners when provided by the UK hospital cancer team. | As above | Participants can report their perceptions from diagnosis through to their follow-up care (last 10 years only) |
| Survey questionnaire to measure to what extent groups of cancer survivors and their intimate partners with differing characteristics receive differing care for their sexual health from the UK hospital cancer team. | Participants' responses from outcomes 1-4 will be used toinform this outcome | Participants diagnosed with cancer in the previous 10 years. |
| D001519 |
| Behavior |