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| ID | Type | Description | Link |
|---|---|---|---|
| KC_Awd_114452 | Other Identifier | University of Illinois at Chicago |
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| Name | Class |
|---|---|
| Rockefeller University | OTHER |
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The purpose of the study is to develop a culturally tailored digital resilience-building intervention to help East Asian immigrants engage in advance care planning discussions with their family caregivers.
Advance care planning (ACP) is a process to facilitate decision-making for future care and document values and preferences. However, the advance directive completion rates in East Asian Americans are low, which may extend to disparities in end-of-life care, including rates of hospice use and prevalence of unwanted aggressive treatments. To address this, this study uses information technology to develop a culturally tailored digital resilience-building intervention with and for East Asian immigrants to help them engage in ACP discussions. There are two aims of this study: (1) Conduct semi-structured interviews with a total of 30 religious leaders to identify the barriers and facilitators associated with discussing ACP and death-related topics with immigrants from China/Taiwan, Japan, and Korea and (2) Develop a culturally tailored digital resilience-building intervention using think-aloud interviews with 27 pairs of East Asian immigrants with cancer and their family caregivers (9 pairs each for immigrants from China/Taiwan, Japan, and Korea).
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Culturally Tailored Digital Resilience-Building | The culturally tailored resilience-building materials will be provided to East Asian immigrants with cancer and their family caregivers. |
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| Religious leaders | Religious leaders providing spiritual care to Asian Americans |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Culturally Tailored Digital Resilience-Building | Behavioral | The Culturally Tailored Digital Resilience-Building materials include an introduction to advance care planning and resilience skills that specifically address cultural beliefs and barriers. |
| Measure | Description | Time Frame |
|---|---|---|
| Usability | Use the System Usability Scale (range: 0-100) to assess the usability of the intervention. Higher scores indicate greater perceived usability by users. | Immediately at the end of the think-aloud interview |
| Measure | Description | Time Frame |
|---|---|---|
| Acceptability | Use the Acceptability E-scale to assess the acceptability of the intervention. Scale total scores range from 6 to 30, and higher scores indicate greater acceptance for the proposed intervention. | Immediately at the end of the think-aloud interview |
| Measure | Description | Time Frame |
|---|---|---|
| Religious leaders experience | An in-depth understanding of religious leaders' perspectives on barriers and facilitators to discussing death-related topics with immigrants from East Asia. | Immediately at the end of the interview |
Inclusion Criteria for Religious Leaders:
Exclusion criteria: Not willing to provide consent.
Inclusion Criteria for Patients:
Exclusion Criteria for Patients:
Inclusion Criteria for Family Caregivers:
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Religious leaders providing spiritual care to Asian Americans/immigrants or Asian Americans/immigrants living with cancer
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| Name | Affiliation | Role |
|---|---|---|
| Li-Ting H. Longcoy | University of Illinois Chicago College of Nursing | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Illinois Chicago | Chicago | Illinois | 60607 | United States |
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
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| Semi-structured interviews | Behavioral | Semi-structured interviews with religious leaders who provide spiritual care to Asian Americans/immigrants. |
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