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This prospective longitudinal study will follow participants with Multifocal Motor Neuropathy over time and collect data on their clinical outcomes, quality of life, and use of health care resources. Participants will follow their regular visit schedule with their treating physician, except for an optional second visit occurring 7 to 14 days after the start of the study to collect biomarker data. No IMP will be administered.
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| Measure | Description | Time Frame |
|---|---|---|
| To characterize MMN patient profiles for participants | up to 61 months | |
| To assess the MMN disease management and disease course | up to 61 months | |
| To assess outcome measures specific to MMN disease and their evolution over time | up to 61 months | |
| To estimate the burden of MMN on participants' quality of life | up to 61 months | |
| To estimate the economic burden for participants with MMN | up to 61 months | |
| To collect data on relevant disease biomarkers | up to 61 months |
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Inclusion Criteria:
Exclusion Criteria:
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Patients with MMN receiving standard of care at their treating physician.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Neuromuscular Clinical and Research Center | Phoenix | Arizona | 85028 | United States | ||
| HonorHealth Neurology - Bob Bove Neuroscience Institute |
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| Scottsdale |
| Arizona |
| 85251 |
| United States |
| UCI Health - ALS and Neuromuscular Center | Orange | California | 92868 | United States |
| Stanford Medicine Health Care - Stanford Neuroscience Health Center | Palo Alto | California | 94304 | United States |
| The Neurology Group | Pomona | California | 91767-2009 | United States |
| Eisenhower Health - Rancho Mirage Medical Center | Rancho Mirage | California | 92270 | United States |
| UC Davis Health - Lawrence J. Ellison Ambulatory Care Center | Sacramento | California | 95817-2307 | United States |
| UCSF Health - UCSF Medical Center | San Francisco | California | 94143-2204 | United States |
| University of Colorado - Anschutz Medical Campus | Aurora | Colorado | 80045 | United States |
| YaleNewHavenHealth - Yale New Haven Hospital | New Haven | Connecticut | 06520 | United States |
| MedStar Georgetown University Hospital | Washington D.C. | District of Columbia | 20007 | United States |
| Medsol Clinical Research Center Inc | Port Charlotte | Florida | 33952 | United States |
| D&H National Research Centers - Tamarac Research Center | Tamarac | Florida | 33321 | United States |
| Hospital Sisters Health System (HSHS) - St Elizabeth's Hospital | O'Fallon | Illinois | 62269 | United States |
| The University of Kansas Health System - Landon Center on Aging | Kansas City | Kansas | 66103 | United States |
| MedStar Georgetown University Hospital | Chevy Chase | Maryland | 20815-6902 | United States |
| Rutgers University - Robert Wood Johnson Medical School | New Brunswick | New Jersey | 08901 | United States |
| Columbia University Irving Medical Center - Neurological Institute of New York | New York | New York | 10032 | United States |
| University of North Carolina - Chapel Hill | Chapel Hill | North Carolina | 27599-7025 | United States |
| Ohio State University Wexner Medical Center - Ohio State Martha Morehouse Outpatient Care | Columbus | Ohio | 43221-3502 | United States |
| Oregon Health and Science University (OHSU) Hospital - Marquam Hill Campus | Portland | Oregon | 97239 | United States |
| Penn Medicine - Penn Medicine University City | Philadelphia | Pennsylvania | 19104 | United States |
| Penn Medicine - Perelman Center for Advanced Medicine | Philadelphia | Pennsylvania | 19104 | United States |
| University of Pittsburgh Medical Center | Pittsburgh | Pennsylvania | 15213 | United States |
| Northwest Houston Neurology - Cypress | Cypress | Texas | 77429 | United States |
| Royal Melbourne Hospital | Parkville | 3050 | Australia |
| Gold Coast University Hospital | Southport | 4215 | Australia |
| Princess Alexandra Hospital | Woolloongabba | 4102 | Australia |
| Allgemeines Krankenhaus der Stadt Wien (AKH Wien) | Vienna | 1090 | Austria |
| Hopital Erasme | Brussels | 1070 | Belgium |
| Universitair Ziekenhuis Antwerpen | Edegem | 2650 | Belgium |
| Universitair Ziekenhuis Gent | Ghent | 9000 | Belgium |
| Universitair Ziekenhuis Brussel | Jette | 1090 | Belgium |
| Universitair Ziekenhuis Leuven - Campus Gasthuisberg | Leuven | 3000 | Belgium |
| L'hopital de la Citadelle - Site Citadelle | Liège | 4000 | Belgium |
| Cliniques Universitaires Saint-Luc | Woluwe-Saint-Lambert | 1200 | Belgium |
| Multiprofile Hospital for Active Treatment - Uni Hospital OOD | Panagyurishte | 4500 | Bulgaria |
| Medical Center Medconsult Pleven OOD | Pleven | 5800 | Bulgaria |
| Military Medical Academy - Military Hospital for Active Treatment Pleven | Pleven | 5800 | Bulgaria |
| University Multiprofile Hospital for Active Treatment and Emergency Medicine N. I. Pirogov | Sofia | 1606 | Bulgaria |
| London Health Sciences Centre - University Hospital | London | N6A 5A5 | Canada |
| Centre Hospitalier de l'Universite de Montreal | Montreal | H2X 0C1 | Canada |
| McGill University Health Centre - The Neuro (Montreal Neurological Institute-Hospital) | Montreal | H3A 2B4 | Canada |
| CHU de Quebec - Hopital de L'enfant Jesus | Québec | G1J 1Z4 | Canada |
| University of Saskatchewan - University of Saskatchewan College of Medicine | Saskatoon | S7H 0G9 | Canada |
| Xiangya Hospital of Central South University | Changsha | 410008 | China |
| The First Affiliated Hospital of Nanchang University | Nanchang | 330006 | China |
| Huashan Hospital of Fudan University | Shanghai | China |
| Fakultni nemocnice Brno - Areal Bohunice | Brno | 62500 | Czechia |
| Fakultni nemocnice Hradec Kralove | Hradec Králové | 500 05 | Czechia |
| Aarhus Universitetshospital | Aarhus | 8200 | Denmark |
| Rigshospitalet - Blegdamsvej | Copenhagen | 2100 | Denmark |
| CHU Angers | Angers | 49933 | France |
| CHU de Bordeaux - Hôpital Pellegrin | Bordeaux | 33000 | France |
| CHU Brest - Hopital La Cavale Blanche | Brest | 29200 | France |
| Hospices Civils de Lyon (HCL) - Hopital Pierre Wertheimer | Bron | 69500 | France |
| Assistance Publique Hopitaux de Paris (AP-HP) - Hopital Bicetre | Le Kremlin-Bicêtre | 94270 | France |
| CHU Lille - Hopital Salengro | Lille | 59037 | France |
| CHU de Limoges - CHU Dupuytren 1 | Limoges | 87042 | France |
| AP-HM - CHU Timone | Marseille | 13385 | France |
| CHU de Nantes - Hotel Dieu | Nantes | 44093 | France |
| CHU de Nice - Hopital Pasteur | Nice | 06001 | France |
| Assistance Publique Hopitaux de Paris (AP-HP) - Hopital Pitie-Salpetriere | Paris | 75013 | France |
| Universitatsklinikum Essen | Essen | 45147 | Germany |
| Universitatsklinikum Giessen und Marburg - Campus Giessen | Giessen | 35385 | Germany |
| Medizinische Hochschule Hannover | Hanover | 30625 | Germany |
| St. Josefs- Krankenhaus Potsdam- Sanssouci | Potsdam | 14471 | Germany |
| Universitatsklinikum Wurzburg | Würzburg | 97080 | Germany |
| Azienda Ospedaliero Universitaria Careggi | Florence | 50134 | Italy |
| Fondazione Serena Onlus - NeMO Brescia | Gussago | 25064 | Italy |
| Azienda Ospedaliera Universitaria Gaetano Martino | Messina | 98125 | Italy |
| Universita degli Studi del Piemonte Orientale Amedeo Avogadro - Scuola di Medicina | Novara | 28100 | Italy |
| Azienda Ospedaliero-Universitaria San Luigi Gonzaga | Orbassano | 10043 | Italy |
| Azienda Ospedaliera Universitaria Policlinico Paolo Giaccone | Palermo | 90129 | Italy |
| Istituto Neurologico Nazionale a Carattere Scientifico IRCCS | Pavia | 27100 | Italy |
| Azienda Ospedaliero Universitaria Pisana - Ospedale Santa Chiara | Pisa | 56126 | Italy |
| Azienda Ospedaliero Universitaria Sant'Andrea | Roma | 00189 | Italy |
| Fondazione PTV Policlinico Tor Vergata | Roma | 133 | Italy |
| Teikyo University Hospital | Itabashi-ku | 173-8606 | Japan |
| National Center of Neurology and Psychiatry | Kodaira-shi | 187-8551 | Japan |
| Dokkyo Medical University Hospital | Mibu | 321-0293 | Japan |
| Riga East Clinical University Hospital | Riga | 1038 | Latvia |
| Pauls Stradins Clinical University Hospital | Riga | LV-1002 | Latvia |
| Medicover Integrated Clinical Services (MICS) - Centrum Medyczne Bydgoszcz | Bydgoszcz | 85-065 | Poland |
| Wielospecjalistyczna Poradnia Lekarska Synapsis | Katowice | 40-123 | Poland |
| Specjalistyczne Gabinety Sp. z o.o. | Krakow | 30-539 | Poland |
| Michalski i Partnerzy Lekarze Spolka Partnerska | Krakow | 31-426 | Poland |
| SP ZOZ Szpital Uniwersytecki w Krakowie | Krakow | 31-503 | Poland |
| CLINIREM Sp z o.o. | Lublin | 20-093 | Poland |
| Rejdak Konrad Indywidualna Praktyka Lekarska | Lublin | 20-605 | Poland |
| Centrum Medyczne Hope Clinic | Lublin | 20-701 | Poland |
| ETG Network - ETG Neuroscience | Warsaw | 02-677 | Poland |
| Spitalul Clinic Judetean de Urgenta Sf. Apostol Andrei | Constanța | 900591 | Romania |
| Univerzitetski klinicki centar Srbije | Belgrade | 11000 | Serbia |
| Univerzitetski klinicki centar Kragujevac | Kragujevac | 34000 | Serbia |
| Hospital General Universitario Dr. Balmis | Alicante | 03010 | Spain |
| Hospital Universitari Germans Trias i Pujol (HUGTP) | Badalona | 08916 | Spain |
| Hospital de la Santa Creu i Sant Pau | Barcelona | 08041 | Spain |
| Hospital Universitario de Basurto | Bilbao | 48013 | Spain |
| Hospital Universitari de Bellvitge | L'Hospitalet de Llobregat | 08907 | Spain |
| Hospital Universitario Central de Asturias | Oviedo | 33011 | Spain |
| Hospital Universitario de Navarra | Pamplona | 31008 | Spain |
| Hospital Universitario de Donostia | San Sebastián | 20014 | Spain |
| Sahlgrenska Universitetssjukhuset - MS - mottagning Sahlgrenska | Gothenburg | 413 45 | Sweden |
| Karolinska Universitetssjukhuset - Huddinge | Huddinge | 141 57 | Sweden |
| North Bristol NHS Trust - Southmead Hospital Bristol | Bristol | BS10 5NB | United Kingdom |
| Lancashire Teaching Hospitals NHS Foundation Trust - Royal Preston Hospital | Fulwood | PR2 9HT | United Kingdom |
| NHS Great Glasgow and Clyde - Queen Elizabeth University Hospital | Glasgow | G51 4TF | United Kingdom |
| Nottingham University Hospitals NHS Trust - Queen's Medical Centre | Nottingham | NG7 2UH | United Kingdom |
| Oxford University Hospitals NHS Foundation Trust - John Radcliffe Hospital | Oxford | OX3 9DU | United Kingdom |
| Northern Care Allicance NHS Foundation Trust - Salford Royal | Salford | M6 8HD | United Kingdom |
| Sheffield Teaching Hospitals NHS Foundation Trust - Royal Hallamshire Hospital | Sheffield | S10 2JF | United Kingdom |
| Somerset NHS Foundation Trust - Musgrove Park Hospital | Taunton | TA1 5DA | United Kingdom |
| Royal Cornwall Hospitals NHS Trust - Royal Cornwall Hospital | Truro | TR1 3LJ | United Kingdom |