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The iParent2Parent (iP2P) program is a new, innovative virtual mentorship program that will connect parents one-to-one with other parents of pediatric kidney transplant recipients who are trained to offer vital peer support and mentorship. Parents of children who received a kidney transplant at The Hospital for Sick Children will be invited to participate as mentors and mentees. The iP2P program can decrease feelings of isolation, improve mental health and have a long-term positive impact on patient health. This research will increase our understanding of one-to-one peer support and leverage eHealth technologies to improve the access to and acceptability of parent peer support interventions.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| iParent2Parent Program | Experimental |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| iParent2Parent Program | Behavioral | iParent2Parent is an online peer support mentorship program that is based on the iPeer2Peer online peer support mentorship program, which has been established in multiple chronic disease populations as a self-management intervention, including in chronic pain and juvenile idiopathic arthritis populations. The iParent2Parent program connect parents one-to-one with other parents of pediatric kidney transplant recipients who are trained to offer vital peer support and mentorship. |
| Measure | Description | Time Frame |
|---|---|---|
| Recruitment rates and withdrawal rates | How many participants were recruited and have withdrawn from the program on average. | Baseline to study completion, an average of 1 year |
| Adherence with the iParent2Parent program | When the participant completes 10 audio or video calls over 12 weeks and 100% when all online outcome measures completed. | Baseline to study completion, an average of 1 year |
| Acceptability (Mentees) | Whether the innovation is agreeable, palatable or satisfactory. Measured via semi-structured interview or focus group. | Baseline to 12 weeks after baseline/immediately after the intervention |
| Acceptability (Mentors) | Whether the innovation is agreeable, palatable or satisfactory. Measured via semi-structured interview or focus group. | Baseline to program completion, an average of one year |
| Level of engagement with the iParent2Parent program (Mentees) | Measured via semi-structured interview or focus group. | Baseline to 12 weeks after baseline/immediately after the intervention |
| Level of engagement with the iParent2Parent program (Mentors) | Measured via semi-structured interview or focus group. | Baseline to program completion, an average of one year |
| Barriers and enablers of the iParent2Parent program (Mentees) |
| Measure | Description | Time Frame |
|---|---|---|
| Parenting stress (Mentees and Mentors) | Parental Stress Scale; 18-item questionnaire. Each question is scored on a scale from 1 to 5, with scores ranging from 18 to 90. An overall higher score means a worse outcome. | Baseline to program completion, an average of one year |
| Psychological distress (Mentees and Mentors) |
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Mentee Inclusion Criteria:
Mentor Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Samantha J. Anthony, PhD, MSW | Contact | 416-813-7654 | 303126 | samantha.anthony@sickkids.ca |
| Sophie Bui, BHSc | Contact | sophie.bui@sickkids.ca |
| Name | Affiliation | Role |
|---|---|---|
| Samantha J. Anthony, PhD, MSW | The Hospital for Sick Children | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| The Hospital for Sick Children | Recruiting | Toronto | Ontario | M5G 1X8 | Canada |
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Pre-post design
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Measured via semi-structured interview or focus group.
| Baseline to 12 weeks after baseline/immediately after the intervention |
| Barriers and enablers of the iParent2Parent program (Mentors) | Measured via semi-structured interview or focus group. | Baseline to program completion, an average of one year |
General Anxiety Disorder-7; 7-item questionnaire. Each question is scored on a scale from 0 to 3, with scores ranging from 0 to 21. An overall higher score means a worse outcome. |
| Baseline to program completion, an average of one year |
| Psychological distress (Mentees and Mentors) | Patient Health Questionnaire Depression Scale; 8-item questionnaire. Each question is scored on a scale from 0 to 3, with scores ranging from 0 to 24. An overall higher score means a worse outcome. | Baseline to program completion, an average of one year |
| Perceived social support (Mentees and Mentors) | Short form version 2.0 of the PROMIS battery for: Social Isolation; 6-item questionnaire. Each question is scored on a scale from 1 to 5 and generates a T-score. An overall higher score means a worse outcome. | Baseline to program completion, an average of one year |
| Perceived social support (Mentees and Mentors) | Short form version 2.0 of the PROMIS battery for: Informational Support; 6-item questionnaire. Each question is scored on a scale from 1 to 5 and generates a T-score. An overall higher score means a better outcome. | Baseline to program completion, an average of one year |
| Perceived social support (Mentees and Mentors) | Short form version 2.0 of the PROMIS battery for: Emotional Support; 6-item questionnaire. Each question is scored on a scale from 1 to 5 and generates a T-score. An overall higher score means a better outcome. | Baseline to program completion, an average of one year |
| Coping (Mentees and Mentors) | Coping Health Inventory for Parents; 16-item questionnaire. Each question about coping behaviour is scored on a scale from 0 to 3, with a possible response of "Did not use" the coping behaviour. Scores range from 0 to 48. An overall higher score means a better outcome. | Baseline to program completion, an average of one year |
| Family Functioning (Mentees and Mentors) | Pediatric Quality of Life Inventory(TM) 2.0 Family Impact Module; 36-item questionnaire with 8 different sections: Physical Functioning, Emotional Functioning, Social Functioning, Cognitive Functioning, Communication, Worry, Daily Activities, and Family Relationships. Each question is scored on a scale from 0 to 4. Items are reverse-scored and linearly transformed to a 0-100 scale. An overall higher score means a better outcome. | Baseline to program completion, an average of one year |