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| Name | Class |
|---|---|
| University of Leeds | OTHER |
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Can a patient-reported symptom-based risk stratification system improve the suspected head and neck cancer (HNC) pathway?
Our methodology includes six interlinked work packages to deliver our aim, with EVEREST-HN 1 encompassing the first of these and seeking to optimise a patient-reported symptom inventory for HNC and outline requirement specification for the SYmptom iNput Clinical (SYNC) system.
The EVEREST-HN pathway should be based on a comprehensive understanding of existing HNC diagnostic pathways and what patients and clinicians value in these. The language used within the EVEREST pathway needs to be accessible and optimal to elicit appropriate information.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients | Approximately 150 adults referred for suspected HNC will be recruited. |
| |
| Staff | Approximately 15 ENT and Maxillofacial) clinicians will be recruited. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| No intervention. | Other | No intervention. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Inventory and specification for the SYmptom iNput Clinical (SYNC) system | To optimise a patient-reported symptom inventory for HNC and outline requirement specification for the SYmptom iNput Clinical (SYNC) system | September 2022 - August 2023 |
| Measure | Description | Time Frame |
|---|---|---|
| To further explore the current suspected HNC pathway and the language used when discussing symptoms. | To understand how clinicians decide subsequent steps for patients referred with suspected HNC, the language patients and clinicians use to describe symptoms and patients' and clinicians' views and experiences of the current diagnostic process for HNC. with a focus on what would work for EVEREST-HN study. |
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Inclusion Criteria:
Patients:
Clinicians:
Exclusion Criteria:
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Patients Recruitment will aim for variation in age, ethnicity, socio-economic status, presenting symptoms.
Clinicians Clinical staff involved in HNC diagnosis. Varying in seniority (consultant, registrar) and specialty (ENT, maxillofacial)
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Sarah Webb | Contact | 0208 915 6666 | EVEREST-HN@rmh.nhs.uk |
| Name | Affiliation | Role |
|---|---|---|
| Vinidh Paleri | Royal Marsden NHS Foundation Trust | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Leeds Teaching Hospitals NHS Trust | Not yet recruiting | Leeds | United Kingdom |
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| ID | Term |
|---|---|
| D006258 | Head and Neck Neoplasms |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
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| September 2022 - August 2023 |
| Liverpool University Hospitals NHS Foundation Trust | Recruiting | Liverpool | United Kingdom |
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| Luton & Dunstable University Hospital | Recruiting | Luton | United Kingdom |
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| Oxford NHS Foundation Trust | Recruiting | Oxford | United Kingdom |
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