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| Name | Class |
|---|---|
| Barnsley Hospital NHS Foundation Trust | OTHER |
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Dysarthria is a speech disorder resulting in speech that is slow, slurred and difficult to understand, limiting a person's opportunities to study, work, and develop relationships.
People with dysarthria often use communication aids to help them to communicate creating spoken messages using a keyboard, touchscreen or joystick. Communication aids can increase independence but are often too slow to keep pace with normal conversation.
Developments in speech recognition technology have led to apps which can learn to recognise a set of words or sounds spoken by the individual with dysarthria, and connect these with a clear spoken output. The investigator's previous research provides some evidence that these voice input communication apps may be faster than traditional communication aids. This study aims to find out who can benefit from this technology, and what support they will need to use it successfully. This information can be used by professionals involved in providing communication aids, and will help the investigators to plan further research into their effectiveness.
This research has two phases:
The investigators have a panel of communication aid users, who are advising and contributing throughout the study, for example, helping the investigators to identify informal support networks to recruit participants from. The investigators will let people know about the findings through support groups used by people with dysarthria, publications read by people involved in providing communication aids, and academic papers and conferences.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention group | Experimental |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Communication aid support | Other | Support to use voice input voice output communication aids |
|
| Measure | Description | Time Frame |
|---|---|---|
| Goal Attainment Scale (measuring change between time points of distance from goal) | Measures attainment of participant defined goals. | Baseline, 3 and 6 months |
| Measure | Description | Time Frame |
|---|---|---|
| Pragmatic Profile of Everyday Communication Skills in Adults (measuring change between time points of pragmatic communication) | Assesses pragmatic language use | Baseline, 3 and 6 months. |
| Measure | Description | Time Frame |
|---|---|---|
| Speed of Communication by measuring time taken to speak out phrase with device - measuring change between timepoints. | Measuring speed of communicating with communication aid | 3 and 6 months |
| System Usability Scale (measuring change between time points) |
Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Kate Fryer | University of Sheffield | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Barnsley Hospital NHS Foundation Trust | Barnsley | S75 2EP | United Kingdom |
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| ID | Term |
|---|---|
| D004401 | Dysarthria |
| ID | Term |
|---|---|
| D001184 | Articulation Disorders |
| D013064 | Speech Disorders |
| D007806 | Language Disorders |
| D003147 | Communication Disorders |
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Questionnaire asking about usability of communication aid
| 3 and 6 months |
| Semi-structured interview | Conversation to ascertain participants experience | Baseline |
| Semi-structured interview | Conversation to ascertain participants experience | 3 months |
| Semi-structured interview | Conversation to ascertain participants experience | 6 months |
| Participant diary (emails between participant and research which will be used as qualitative data). | Email diary | 6 months |
| D019954 |
| Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D009422 | Nervous System Diseases |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |