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At present, there is no empirical data that specifies the likely prevalence of purpose in life disruption among various clinical populations. Between one-third and one-half of cancer survivors report some degree of existential distress during or after their treatment, but these findings are not specific to the domain of purpose in life.
To address the aforementioned gap, we propose to conduct a survey study to determine the prevalence of purpose disruption in two clinical populations and determine if the prevalence of purpose disruption in these populations is different from that of a normative population.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Adults with Early Stage Cancer |
| ||
| Adults with Traumatic Brain Injury |
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| Health Control Adults |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Survey | Other | Completion of a Purpose in Life Survey |
|
| Measure | Description | Time Frame |
|---|---|---|
| Purpose Status Question | A single forced-choice self-report screener question that we developed in order to characterize existential distress related to purpose in life (PSQ: "Related to living with purpose in life, right now I am: moving backwards; stalled; figuring it out; moving forward on a path"). | Through Study Completion, about 15 minutes |
| Measure | Description | Time Frame |
|---|---|---|
| Work and Adjustment Scale | A 5-item self-report questionnaire to characterize functioning related to work, social life, leisure, home management, and relationships. | Through Study Completion, about 15 minutes |
| Meaning in Life Questionnaire |
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Inclusion Criteria:
Exclusion Criteria:
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Adults who are either (1) healthy controls, (2) individuals with a qualifying cancer diagnosis, or (3) individuals with a qualifying Traumatic Brain Injury
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| Name | Affiliation | Role |
|---|---|---|
| Mary V Radomski, PhD | Allina Health - Courage Kenny Rehabilitation Institute | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Abbott Northwestern Hospital | Minneapolis | Minnesota | 55407 | United States |
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| ID | Term |
|---|---|
| D001943 | Breast Neoplasms |
| D000070642 | Brain Injuries, Traumatic |
| ID | Term |
|---|---|
| D009371 | Neoplasms by Site |
| D009369 | Neoplasms |
| D001941 | Breast Diseases |
| D012871 | Skin Diseases |
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| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
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A 10-item questionnaire designed to measure 2 dimensions of meaning in life: Presence of Meaning (how much respondents feel their lives have meaning) and Search for Meaning (how much respondents strive to find meaning and understanding in their lives).
| Through Study Completion, about 15 minutes |
| Life Engagement Test | A 6-item self-report questionnaire that captures the extent to which a person engages in activities that are personally valued. | Through Study Completion, about 15 minutes |
| D017437 |
| Skin and Connective Tissue Diseases |
| D001930 | Brain Injuries |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D006259 | Craniocerebral Trauma |
| D020196 | Trauma, Nervous System |
| D014947 | Wounds and Injuries |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |