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The goal of this qualitative and quantitative cross-sectional observational study is to describe the complexity of the diagnostic pathway for Functional Neurological Symptomatology Disorder (TSNF) in children and adolescents based on the experience of the different protagonists of care (parents, adolescents, caregivers).
The main question[s] it aims to answer are:
Conversion Disorder (CD) or Functional Neurological Symptomatology Disorder (FNSD) is a pathology characterized by the occurrence of non-simulated physical symptoms of neurological appearance in the absence of underlying organic pathology.
The hyperspecialization of medicine makes the therapeutic approach to FNSD very complex for several reasons:
The objective of this mixed qualitative and quantitative study is to study the complexity of the care pathway of patients aged 6 to 18 years with a diagnosis of TSNF, as well as their parents and the health professionals who have taken care of them. The collection of their experience will be done by means of semi-structured interviews which will then be analyzed according to the Interpretative Phenomenological Analysis.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Study population | The entire study population |
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| Measure | Description | Time Frame |
|---|---|---|
| Participants' experience of the diagnostic circumstances and care pathway | Obtaining a thematic grid describing the participants' experience of the diagnostic circumstances and care pathway of TSNF in children and adolescents. | 1 day |
| Measure | Description | Time Frame |
|---|---|---|
| Description the diversity of experiences according to each type of participant | Obtaining a thematic grid describing the diversity of experiences according to each type of participant | 1 day |
| Participants' expectations regarding the diagnosis and management of TSNF |
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Inclusion Criteria:
Patients
Parents / legal representatives
o Adult subject, parent or legal representative of a child or adolescent meeting the above-mentioned inclusion criteria and participating in the study
Health professionals
o Person affiliated with the Clermont-Ferrand University Hospital, with experience in caring for children or adolescents with a conversion disorder (pediatrician, psychiatrist, nurse, psychologist,
For all participants
Exclusion Criteria:
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Our population will be a clinical population, made up of children and adolescents aged 6 to 18 years followed at the Clermont-Ferrand University Hospital for TSNF, their parents, and the health professionals who care for them.
Before the age of 6, it is not easy to talk about oneself and the collection of information is generally done through the parents. After the age of 6, children are able to describe their experience, which allows us to collect their experiences and those of their parents separately. Adolescents between 16 and 18 years of age are often still followed by pediatric teams, and mostly followed by child psychiatry, which justifies the broad cut-off of 18 years.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Lise Laclautre | Contact | 334.73.754.963 | promo_interne_drci@chu-clermontferrand.fr |
| Name | Affiliation | Role |
|---|---|---|
| Aurore Legrand-Viskoc | University Hospital, Clermont-Ferrand | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| CHU de Clermont-Ferrand | Recruiting | Clermont-Ferrand | France |
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| ID | Term |
|---|---|
| D003291 | Conversion Disorder |
| ID | Term |
|---|---|
| D013001 | Somatoform Disorders |
| D001523 | Mental Disorders |
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Obtained a thematic grid describing the participants' expectations regarding the diagnosis and management of TSNF |
| 1 day |
| Total duration of the diagnosis pathway | Total duration (days) between the 1st medical consultation related to TSNF and the 1st psychological consultation (psychiatrist, child psychiatrist, psychologist or multidisciplinary evaluation with psychologist or psychiatrist on the team). This period corresponds to the pre-diagnostic period for the study. | 1 day |
| Total number of outpatient consultations related to TSNF | Total number of outpatient consultations related to TSNF during the pre-diagnosis period, including: consultations with general practitioners and specialists other than psychiatrists, consultations in pediatric or adult emergency rooms. | 1 day |
| Total number of part-time inpatient stays | Total number of part-time inpatient stays related to TSNF during the pre-diagnosis period | 1 day |
| Total number of full-time inpatient stays in the OOH setting | Total number of full-time inpatient stays in the OOH setting during the pre-diagnosis period | 1 day |
| Total length of stay in full-time OCM hospitalization | Total length of stay in full-time OCM hospitalization related to TSNF in the pre-diagnosis period. | 1 day |
| Presence of one or more biological or radiological additional examination from the list | Presence of at least one biological or radiological additional examination from the following list during the care pathway : biological blood sample, biological cerebrospinal fluid sample, any radiological examination, electroencephalogram or electromyogram related to TSNF or to the search for a differential diagnosis in the pre-diagnostic period. | 1 day |