Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care

The Impact of a Non-Profit Cancer Advocacy Organization on Patient Reported Outcomes and Access to Care: A Multisite, Longitudinal Trial

The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.

Inclusion Criteria:

• Be diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN).

• Have received, be receiving, or be planning to receive primary or relapse treatment for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN) and meet at least one of the following criteria:

  • Be currently receiving treatment which started within the past 18 months OR
  • Be planning to start treatment within one month OR
  • Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days.

• Not be currently participating in any LLS programs or services

• Be willing to be followed for 6 months

• Speak English or Spanish

Exclusion Criteria:

• Are not diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)

• Do not meet at least one of the following criteria if treated or planning to get treated for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN):

  • Be currently receiving treatment which started within the past 18 months OR
  • Be planning to start treatment within one month OR
  • Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days.

• Are currently participating in any LLS programs or services

• Are not willing to be followed for 6 months

• Do not speak English or Spanish.