Decision Making Support for Parents and Caregivers

Decision Making Support for Parents and Caregivers

The purpose of this study is to test the feasibility and acceptability of a tool to support decision making for parents of critically ill infants.

In this single-arm mixed methods prospective feasibility study, we will enroll infants, parents, and clinicians. The intervention is a paper-based decision guide that contains a values clarification exercise and question prompt list.

Study participants will include English-speaking parents of critically ill infants and children admitted to Duke University Hospital.

Infant inclusion criteria will include

1. age < 1 year,
2. admission to a critical care unit, and
3. an anticipated serious health care decision

All parents of eligible infants will be considered for inclusion. Parent exclusion criteria will include 1) age < 18 years, 2) hearing or speech impairment, and 3) non-English speakers.

All clinicians of eligible infants will be considered for inclusion.