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The living will is a legal document derived from a communication and deliberation process, medical ethical aspect, currently regulated in Mexico by the General Health Law and the Health Law of Mexico City.
Knowledge of living will in the population with chronic diseases, including rheumatic diseases, has been little addressed. Most patients do not know what the living will document is, so they do not carry it out and others, despite knowing it, have a passive attitude toward doing it.
A study will be carried out on patients with rheumatic diseases and healthy family controls. Patients will be selected from those attending the Department of Immunology and Rheumatology in Mexico City outpatient department, including consecutive cases.
The patients will be assessed for their quality of life and disability. Patients and controls will be evaluated on the knowledge of living will, their perceptions about specific health outcomes, sociodemographic characteristics, comorbidities, and psychiatric pathology.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Cases | Patients with rheumatic diseases from the outpatient clinic at a tertiary care level in Mexico City |
| |
| Controls | Two patients´ relatives of the same sex, age ± five years and who are known to be healthy |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Health Assessment Questionnaire (HAQ) | Other | The HAQ is based on five patient-centered dimensions: disability, pain, medication effects, costs of care, and mortality |
|
| Measure | Description | Time Frame |
|---|---|---|
| Knowledge of the living will with the living will questionnaire (locally development) | To evaluate the knowledge of the living will, using the living will questionnaire (locally development), among the patients with rheumatic diseases and healthy controls. | 1 day At study inclusion (After their rheumatology consultation) |
| Perceptions of Health Outcomes with the perceptions of health outcomes questionnaire (locally development) | To evaluate the perceptions of the of health outcomes using the perceptions of health outcomes questionnaire (locally development), among the patients with rheumatic diseases and healthy controls | 1 day At study inclusion (After their rheumatology consultation) |
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Inclusion Criteria:
Cases
Exclusion Criteria:
Cases
Controls
- Withdrawal of the study
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Patients will be selected from those attending the Department of Immunology and Rheumatology in Mexico City outpatient department, and the controls will be patients´ relatives of the same sex, age ± five years and who are known to be healthy
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Virginia Pascual-Ramos, Dr. | Contact | 55 5487 0900 | 4603 | virtichu@gmail.com |
| Name | Affiliation | Role |
|---|---|---|
| Virginia Pascual-Ramos, Dr. | National Institute of Medical Sciences and Nutrition, Salvador Zubiran | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán | Recruiting | Mexico City | 14080 | Mexico |
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| Depression, Anxiety and Stress Scale (DASS-21) | Other | DASS-21 is a set of three self-report scales designed to measure the emotional states of depression, anxiety, and stress. Each of the three DASS-21 scales contains 7 items, divided into subscales with similar content |
|
| Brief Resilient Coping Scale | Other | Brief Resilient Coping Scale is a 4-item measure designed to capture tendencies to cope with stress in a highly adaptive manner |
|
| WHOQOL-BREF | Other | WHOQOL-BREF is a 26-item instrument consisting of four domains: physical health, psychological health, social relationships, and environmental health; it also contains QOL and general health items |
|
| Routine assessment of patient index data 3 (RAPID-3) | Other | RAPID- 3 measures: function, pain, and patient global estimate of status. Each of the 3 individual measures is scored 0 to 10, for a total of 30 |
|
| Rheumatic disease comorbidity index | Other | It is rated from 0 to 9 and comprises 11 comorbid conditions including lung disease, cardio-vascular disease, hypertension, diabetes, fracture, depression, cancer, and gastrointestinal ulcer |
|
| Living will questionnaire | Other | A questionnaire with 17 items about knowledge of the living will. |
|
| Perceptions of Health Outcomes Questionnaire | Other | A questionnaire with 7 items about the probability of quitting the job, getting an infectious disease, requiring emergency medical attention, hospitalization or intensive care, dependence and death. |
|
| ID | Term |
|---|---|
| D012216 | Rheumatic Diseases |
| ID | Term |
|---|---|
| D009140 | Musculoskeletal Diseases |
| D003240 | Connective Tissue Diseases |
| D017437 | Skin and Connective Tissue Diseases |
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| ID | Term |
|---|---|
| C020182 | ametantrone |
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